Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.

    If It Looks and Acts Like the Flu but Isn’t the Flu, Then What Is It?
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    If It Looks and Acts Like the Flu but Isn’t the Flu, Then What Is It?

    This question is what the doctors at Massachusetts’ Cambridge Hospital were trying to determine. According to a recent article in the New York Times, a twenty-two-year-old man was rushed to…

    Continue Reading If It Looks and Acts Like the Flu but Isn’t the Flu, Then What Is It?
    These Words Are Not Helpful: “Your Test Results are Negative. You Are No Doubt Imagining Most of Your Pain”
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    These Words Are Not Helpful: “Your Test Results are Negative. You Are No Doubt Imagining Most of Your Pain”

      The patient sitting in front of this physician was later diagnosed with severe chronic fatigue syndrome (myalgic encephalomyelitis or ME/CFS). But for now, the patient had to endure humiliation…

    Continue Reading These Words Are Not Helpful: “Your Test Results are Negative. You Are No Doubt Imagining Most of Your Pain”
    Compassion Corner: Being Human Does Not Take Much Effort; It Only Takes Fifty-six Seconds
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    Compassion Corner: Being Human Does Not Take Much Effort; It Only Takes Fifty-six Seconds

      Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is…

    Continue Reading Compassion Corner: Being Human Does Not Take Much Effort; It Only Takes Fifty-six Seconds
    NYUAD Researchers Identify the Code That Regulates Liver Regrowth: A New Form of Regenerative Medicine May Follow
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    NYUAD Researchers Identify the Code That Regulates Liver Regrowth: A New Form of Regenerative Medicine May Follow

      Researchers at NYU Abu Dhabi (NYUAD) have discovered the code that is associated with the liver’s genome (complete set of DNA) and its ability to regenerate. According to a…

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    The First Patient in China to be Accepted Under its 2019 Compassionate Use Policy

    Beijing, China: According to an article in a sister publication of Sixth Tone, a woman living in China who has been treated during the past fourteen years for paroxysmal nocturnal…

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    For People With a Rare Disease, This Patient Recommends Adding a PCP to Your List of Doctors
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    For People With a Rare Disease, This Patient Recommends Adding a PCP to Your List of Doctors

      Claire Richmond can be considered a very experienced patient. It took Claire nineteen years to receive a diagnosis for her rare disease. During that time, she had been dismissed…

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    Compassion Corner: Type 1 Diabetes Patient Credits Sansum Clinic with ‘A Lifetime of Compassionate Care’
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    Compassion Corner: Type 1 Diabetes Patient Credits Sansum Clinic with ‘A Lifetime of Compassionate Care’

      Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is…

    Continue Reading Compassion Corner: Type 1 Diabetes Patient Credits Sansum Clinic with ‘A Lifetime of Compassionate Care’
    Two Decades of Research May Be Reversed by a New Alzheimer’s Discovery
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    Two Decades of Research May Be Reversed by a New Alzheimer’s Discovery

    Alois Alzheimer, a clinical psychiatrist and expert in the study of the nervous system, reported a disease process of the cerebral cortex. The year was 1906. We are approaching July…

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    Compassion Corner: Compassion is Not Just About Caring, It’s About Taking That Extra Step. This Patient’s Stage 3 Cancer Could Have Been Avoided
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    Compassion Corner: Compassion is Not Just About Caring, It’s About Taking That Extra Step. This Patient’s Stage 3 Cancer Could Have Been Avoided

    Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…

    Continue Reading Compassion Corner: Compassion is Not Just About Caring, It’s About Taking That Extra Step. This Patient’s Stage 3 Cancer Could Have Been Avoided
    New Hope for ALS and Friedreich’s Ataxia Patients Through Viral Vector Transports
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    New Hope for ALS and Friedreich’s Ataxia Patients Through Viral Vector Transports

    A recent announcement in Biospace by Capsida Biotherapeutics and CRISPR Therapeutics of their newly-formed partnership offers renewed hope for amyotrophic lateral sclerosis (ALS) and Friedreich’s Ataxia patients. The companies believe…

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    Biogen’s Newly Approved Alzheimer’s Drug Ships in 2 Weeks. The Confirmatory Trial Will Take 8 Years.
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    Biogen’s Newly Approved Alzheimer’s Drug Ships in 2 Weeks. The Confirmatory Trial Will Take 8 Years.

      The pressure was on. Researchers had been studying Alzheimer’s for decades. Every morsel of discovery was hailed as moving closer to a cure and results were always expected soon…

    Continue Reading Biogen’s Newly Approved Alzheimer’s Drug Ships in 2 Weeks. The Confirmatory Trial Will Take 8 Years.