Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.
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According to an article in Biospace, Biogen, a biotechnology company headquartered in Cambridge, Massachusetts, presented new data on its multiple sclerosis (MS) therapies at the virtual Meeting of the American…
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Biogen’s Recent Progress in Relapsing Multiple Sclerosis Presented at the 2021 Meeting of the AAN
Veterinary ophthalmologists at Pennsylvania’s Veterinarian School of Medicine found that LCA in humans mimics the same type of disease in dogs. According to a recent article in Science Daily, vision…
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Humane Lab Testing in Dogs Leads to a Possible Cure for Leber Congenital Amaurosis (LCA) in Humans
Professional musicians generally practice several hours every day, but that does not hold true for Reece Jacob, age 29, from Manchester. UK’s Daily Mail recently carried an article about Reece…
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These COVID-19 Patients Are in it for The Long Haul
A recent article in Cancer Network announced that motixafortide met its primary endpoint in the GENESIS trial for multiple myeloma patients who were scheduled for stem cell transplantation. Often, the…
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GENESIS Trial: Almost Ninety Percent of Multiple Myeloma Patients Were Able to Proceed to Transplantation
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According to a recent article in Parkinson’s News Today, Dr. Per Borghammer, Research Professor at Denmark’s Aarhus University, proposed a new model that has the potential to identify early Parkinson’s…
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A New Way to Evaluate Parkinson’s Disease: Brain First and Body First
According to a recent article in MedicalXpress, researchers at Houston Methodist have reported acute transverse myelitis (ATM) in forty-three COVID-19 patients across twenty-one countries. Spinal cord lesions developed in these…
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Transverse Myelitis Appears in 43 COVID-19 Patients in 21 Countries
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Most cancers are inflamed (hot tumors) and under the right conditions can be controlled by T-cells. According to a recent article in Genetic Engineering and Biology News, there is another…
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Colorado Researchers are Searching for Ways to End the Destruction Caused by Cold Tumors
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Is it or was it COVID? That is the question doctors and parents are asking as the number of children admitted to the hospital for a rare pediatric inflammatory…
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The Rising Cases of Multisystem Inflammatory Syndrome in Children After COVID Infection
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British researchers recently conducted a study of 235,379 COVID-19 survivors over a six-month period after they survived their initial infection. The researchers discovered that one out of three patients…
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Brain Dysfunction: Symptoms Appear Long After the COVID-19 Infection Has Resolved
In the last decade, scientists have made great strides in uncovering details of the underlying causes of neurodegenerative diseases. It is only a matter of time that treatment and prevention…
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Light Therapy: A Safe, Effective, and Low-Cost Approach to Some Neurodegenerative Diseases
Solna Braude describes her brother’s struggle with neurological disorders in her interview with Cure PSP. Her brother, Laurence, was no stranger to the medical world. He was a surgeon, cornea…
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He Received Eight Different Diagnoses But A Brain Autopsy Proved Them All Wrong
William Frackrell’s desire to serve his country was born out of his years as a boy scout and his military career. Then, according to a FOX 13 exclusive with William’s…
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A Utah Man Finds Himself Paralyzed by Guillain-Barré Syndrome and Stranded in India
The Johnson & Johnson (J&J) vaccine was welcomed as the third alternative to Moderna and Pfizer vaccines but with even more perks. It was a one-time shot that used “viral…
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Update: The Johnson & Johnson Vaccine is Still On Hold But the Risk is Low
Alarming details of Katy Grainger’s sepsis infection were covered in the April 2021 issue of Women’s Magazine. The interview took place over two years after Katy lost both feet and…
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Despite Every Precaution, She Lost Out to Sepsis
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In a recent interview with CNN, Dan Schoenthal, a retired 56-year-old police officer of Great Valley, New York, explained that in 2015 he received a diagnosis of Parkinson’s disease.…
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A Man with Parkinson’s is Keeping His Promise to Hike the AT
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Prime editing, a new entry in gene-editing technology, is said to be an extension of the “genetic toolbox.” According to a recent article in Science Daily, prime editing designs…
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Meet the New Gene-Editing Technology: Prime Editing
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It is now commonplace for patients to find that a drug such as prednisone, usually prescribed for relief of allergic and rheumatic symptoms, is also prescribed to treat leukemia. According…
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A Young Woman With Fibronectin Glomerulopathy Was Treated Successfully With Prednisone
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Researchers have been able to identify similarities in outcomes between colorectal liver metastases that cannot be completely removed by surgery (unresectable) and patients with the KRAS mutation. Surgical resection…
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Patients with Unresectable Colorectal Liver Metastases and KRAS Mutations Show Reduced Response Rates
CNN Newsource ran a special report about five-year-old Emmett Monaco of Beaverton, Oregon who is fighting to stay alive, but his body is slowly failing him. Emmett was diagnosed with…
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Krabbe Disease is Taking Over Emmett’s Life But His Parents are Fighting to Save Other Children
A healthy brain translates into a healthy blood-brain barrier (BBB) which is a complex series of blood vessels in the brain. When the BBB malfunctions, it may lead to diabetes,…
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The Blood Brain Barrier’s Role in Alzheimer’s Disease
A note from Lisa: Please read and share this piece with anyone living with ALS or any life-threatening condition that can benefit from compassionate use: Lisa’s friend of thirty years…
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Thousands of People Have Joined Lisa in Her Appeal to Biogen Asking for Access to ALS Drug
According to a recent report in Medical Xpress, over twenty studies have indicated escalating events of nonalcoholic fatty liver disease (NAFLD) in children worldwide. In the United States, NAFLD heads…
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Studies Show That Sucrose May Be Partly Responsible for Chronic Liver Disease in Children
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Lauren Peikoff’s painful and discouraging experience is unfortunately very common. According to an account reported in NBC’s Think section, Lauren, an associate producer of a national news program, manages…
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It Took Thirteen Years for Her to Get Diagnosed with Endometriosis
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Cancer Network recently reported that Jazz Pharmaceuticals’ Vyxeos was approved by the FDA to treat therapy-related pediatric patients one year or older who were newly diagnosed with acute myeloid…
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The FDA Approves An Expanded Chemotherapy Treatment For Acute Myeloid Leukemia to Include Children
It takes courage to suspect that there is something wrong and doctors are misdiagnosing your symptoms. It takes courage to keep going back and politely but firmly asks for more…
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Adjusting to Her New World With Neuromyelitis Optica Spectrum Disorder