Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.
According to a recent article in MedicalXpress, researchers at Houston Methodist have reported acute transverse myelitis (ATM) in forty-three COVID-19 patients across twenty-one countries. Spinal cord lesions developed in these…
Continue Reading
Transverse Myelitis Appears in 43 COVID-19 Patients in 21 Countries
source: pixabay.com
Most cancers are inflamed (hot tumors) and under the right conditions can be controlled by T-cells. According to a recent article in Genetic Engineering and Biology News, there is another…
Continue Reading
Colorado Researchers are Searching for Ways to End the Destruction Caused by Cold Tumors
source: pixabay.com
Is it or was it COVID? That is the question doctors and parents are asking as the number of children admitted to the hospital for a rare pediatric inflammatory…
Continue Reading
The Rising Cases of Multisystem Inflammatory Syndrome in Children After COVID Infection
source: pixabay.com
British researchers recently conducted a study of 235,379 COVID-19 survivors over a six-month period after they survived their initial infection. The researchers discovered that one out of three patients…
Continue Reading
Brain Dysfunction: Symptoms Appear Long After the COVID-19 Infection Has Resolved
In the last decade, scientists have made great strides in uncovering details of the underlying causes of neurodegenerative diseases. It is only a matter of time that treatment and prevention…
Continue Reading
Light Therapy: A Safe, Effective, and Low-Cost Approach to Some Neurodegenerative Diseases
Solna Braude describes her brother’s struggle with neurological disorders in her interview with Cure PSP. Her brother, Laurence, was no stranger to the medical world. He was a surgeon, cornea…
Continue Reading
He Received Eight Different Diagnoses But A Brain Autopsy Proved Them All Wrong
William Frackrell’s desire to serve his country was born out of his years as a boy scout and his military career. Then, according to a FOX 13 exclusive with William’s…
Continue Reading
A Utah Man Finds Himself Paralyzed by Guillain-Barré Syndrome and Stranded in India
The Johnson & Johnson (J&J) vaccine was welcomed as the third alternative to Moderna and Pfizer vaccines but with even more perks. It was a one-time shot that used “viral…
Continue Reading
Update: The Johnson & Johnson Vaccine is Still On Hold But the Risk is Low
Alarming details of Katy Grainger’s sepsis infection were covered in the April 2021 issue of Women’s Magazine. The interview took place over two years after Katy lost both feet and…
Continue Reading
Despite Every Precaution, She Lost Out to Sepsis
source: pixabay.com
In a recent interview with CNN, Dan Schoenthal, a retired 56-year-old police officer of Great Valley, New York, explained that in 2015 he received a diagnosis of Parkinson’s disease.…
Continue Reading
A Man with Parkinson’s is Keeping His Promise to Hike the AT
source: pixabay.com
Prime editing, a new entry in gene-editing technology, is said to be an extension of the “genetic toolbox.” According to a recent article in Science Daily, prime editing designs…
Continue Reading
Meet the New Gene-Editing Technology: Prime Editing
source: pixabay.com
It is now commonplace for patients to find that a drug such as prednisone, usually prescribed for relief of allergic and rheumatic symptoms, is also prescribed to treat leukemia. According…
Continue Reading
A Young Woman With Fibronectin Glomerulopathy Was Treated Successfully With Prednisone
source: pixabay.com
Researchers have been able to identify similarities in outcomes between colorectal liver metastases that cannot be completely removed by surgery (unresectable) and patients with the KRAS mutation. Surgical resection…
Continue Reading
Patients with Unresectable Colorectal Liver Metastases and KRAS Mutations Show Reduced Response Rates
CNN Newsource ran a special report about five-year-old Emmett Monaco of Beaverton, Oregon who is fighting to stay alive, but his body is slowly failing him. Emmett was diagnosed with…
Continue Reading
Krabbe Disease is Taking Over Emmett’s Life But His Parents are Fighting to Save Other Children
A healthy brain translates into a healthy blood-brain barrier (BBB) which is a complex series of blood vessels in the brain. When the BBB malfunctions, it may lead to diabetes,…
Continue Reading
The Blood Brain Barrier’s Role in Alzheimer’s Disease
A note from Lisa: Please read and share this piece with anyone living with ALS or any life-threatening condition that can benefit from compassionate use: Lisa’s friend of thirty years…
Continue Reading
Thousands of People Have Joined Lisa in Her Appeal to Biogen Asking for Access to ALS Drug
According to a recent report in Medical Xpress, over twenty studies have indicated escalating events of nonalcoholic fatty liver disease (NAFLD) in children worldwide. In the United States, NAFLD heads…
Continue Reading
Studies Show That Sucrose May Be Partly Responsible for Chronic Liver Disease in Children
source: pixabay.com
Lauren Peikoff’s painful and discouraging experience is unfortunately very common. According to an account reported in NBC’s Think section, Lauren, an associate producer of a national news program, manages…
Continue Reading
It Took Thirteen Years for Her to Get Diagnosed with Endometriosis
source: pixabay.com
Cancer Network recently reported that Jazz Pharmaceuticals’ Vyxeos was approved by the FDA to treat therapy-related pediatric patients one year or older who were newly diagnosed with acute myeloid…
Continue Reading
The FDA Approves An Expanded Chemotherapy Treatment For Acute Myeloid Leukemia to Include Children
It takes courage to suspect that there is something wrong and doctors are misdiagnosing your symptoms. It takes courage to keep going back and politely but firmly asks for more…
Continue Reading
Adjusting to Her New World With Neuromyelitis Optica Spectrum Disorder
source: pixabay.com
In a recent contribution to MSN, Dr. Christopher Austin, director of the NIH Advancing Translational Sciences, compared the medical community’s record-breaking approach to the COVID-19 pandemic with current efforts…
Continue Reading
Doctor Urges His Colleagues to Apply Lessons from COVID-19 to Rare Diseases
source: pixabay.com
Macey Brietenback, a resident of Bel Air, Maryland, is nineteen years old and has endured various operating procedures over 70 times. WJZ has been following Macey’s struggle with her…
Continue Reading
Visceral Myopathy Patient Receives Digestive System Transplant
One year ago, Dr. Audrey Odom John Chief of the Division of Infectious Diseases at Philadephia’s Children’s Hospital, treated a teenage patient for what seemed to be a new disease.…
Continue Reading
Researchers Worldwide are Searching for Answers to a New Disease Affecting Children with COVID-19
The latest gene editing technology, prime editing, expands the 'genetic toolbox' for more precisely creating disease models and correcting genetic problems, scientists say. Read the source article at sciencedaily.com
Continue Reading
Prime editing enables precise gene editing without collateral damage
Click here for updates on this story BEAVERTON, Oregon ( KPTV ) — A 5-year-old Beaverton boy is fighting a rare disorder called Krabbe disease. His parents say it’s possible…
Continue Reading
Young boy’s parents fight to add rare Krabbe disease to newborn screening test