Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.
Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
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Compassion Corner: Myths Surrounding Compassionate Care During the Pandemic
Over the years, an inordinate amount of time and resources have been spent on the search for the cause of Alzheimer’s disease. According to a recent article in Medical News…
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Alzheimer’s: Are We There Yet? Breakthrough Study in Australia
The medical term ‘inflammatory bowel disease’ is fairly common. But most people are not familiar with the ‘extra-intestinal manifestations (EIMS)' of IBD. A recent article in the AGA Journals Blog…
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Looking Beyond IBD and the GI Tract
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Science Direct recently published a Respiratory Medicine Case Report that may impact future Cystic Fibrosis (CF) treatment. The case involves adult brothers herein referred to for purposes of this…
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The Unusual Clinical Profile of Three Brothers With Cystic Fibrosis Warrants a New Look at Standard CF Care
Francis Collins, M.D. is the director of the NIH which is involved with a national study of long COVID. According to a report by Alaska Public Media, the NIH has…
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Scientists Have Identified Over 200 Symptoms Associated With Long COVID
According to a recent news item that appeared on The Denver Channel, we are now in the age of genetic research that could have an impact on the lives of…
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Can CRISPR Transform Rare Diseases into Chronic Disorders?
Frontiers In Medicine recently published a critical review by Maureen Hanson and Adam O’Neal of Cornell University’s Department of Biology and Genetics. The authors searched for the cause of myalgic…
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A Study of Chronic Fatigue Syndrome and Its Relationship to Enteroviruses
According to a recent article in the International Business Times, a twenty-two-month-old girl living in Odisha, India was diagnosed with pulmonary alveolar proteinosis. The disease causes respiration difficulties due to…
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Twenty-two Months Old With a Rare Disease and COVID-19 Then a “Lung Washing”
According to an article submitted to StatNews by members of the Barth Syndrome Foundation, the FDA approved the drug Aduhelm in accordance with its accelerated approval program. Although the treatment…
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Barth Syndrome Chairman Appeals to the FDA For Appropriate Guidelines When Approving Drugs for Ultra-Rare Diseases
ABC News recently featured an article about Isabella Cristobal and Sergio Soto. They decided to get married shortly after learning that Sergio’s cancer had spread and he had only…
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When They Were Told His Leukemia Had Spread They Planned a Wedding to Celebrate His Life
Part II And Finally, Maguire and colleagues also reported on the care of NAS infants and found three areas somewhat similar to the last two reports. The team reported concern…
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The Tragedy of Opioid Use During Pregnancy: Neonatal Abstinence Syndrome, Part 2
Part I This is the first of a two-part series on ‘compassion fatigue' and burnout in an area of nursing that, over the years, has seen a significant increase in…
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The Tragedy of Opioid Use During Pregnancy: Neonatal Abstinence Syndrome, Part 1
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Genetic Engineering and Biotechnology News recently published an article describing how engineered cells were implanted into rheumatoid mouse models. The cells used in the study were able to sense…
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CRISPR-Cas9’s Latest Genome Editing Feat: Stem Cells That Deliver Drugs in Response to Inflammation
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Steven Rodriguez was nineteen years old attending college in California when he began to have severe headaches. A recent article from the UCSF Science Center gives an account of Steven’s…
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A Mother’s Recollection of a UCSF Medical Center Cancer Ward and its Compassionate Nurses
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The outcome of myelodysplastic syndrome (MDS) varies. The disease can lie dormant for decades, or it can become fatal in a matter of months. According to a recent article in…
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A New Prediction Model Improves Accuracy in Determining the Probability of MDS Patients’ Survival
Micah Gillings of Cambourne, Cambridgeshire was nineteen years old when he was diagnosed with an enlarged heart as evidenced in an X-ray taken in January 2020. An article appeared this…
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The Doctor Mistakenly Examined An Eight-Year-Old X-ray; A Teenager Died Four Months Later
Namrah and Aslan Jalil, residents of Islamabad in Pakistan, recently interviewed with VICE World News describing their struggle to arrange for their four-year-old son, Aslan, to be brought to…
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Islamabad, Pakistan: Aslan Needed Money for Rare Surgery for Heterotaxy and Twitter Came to the Rescue
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Researchers at MD Anderson’s Cancer Center recently announced the results of its Phase II clinical trial. The researchers found that the combination of bevacizumab and atezolizumab decreased clinical trial…
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Researchers Found These Drugs Reduced Malignant Peritoneal Mesothelioma
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Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…
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Compassion Corner: This Patient Didn’t Let a Hurtful Incident Ruin Her Appreciation for the Compassionate Care She Received From Other Nurses
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The Arizona Bioindustry Association recently published an article stating that researchers at Arizona University are now proceeding to a Phase 2b clinical trial for a newly developed therapy for Alzheimer's. The…
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Alzheimer’s: Researchers Testing New Therapy to Regain Cognitive Function
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Breast cancer is a result of a cell in the breast mutating and multiplying rapidly. There are over 275,000 occurrences of breast cancer in the U.S. each year. However, new…
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A Case History of a Rheumatologist With Relapsed Leukemia and Triple-Negative Breast Cancer
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According to a recent article in MedicalXpress, researchers led by professor of medicine Dr. Jing Chen uncovered new data showing how acute myeloid leukemia (AML) becomes active and progresses. The…
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Acute Myeloid Leukemia (AML): The Fine Line Between Proliferation of AML Cells and Death Of AML Cells
A heartbreaking announcement in PR Week stated that Lisa Stockman Mauriello had died of ALS in her New Jersey home at age 52 on August 4, 2021. As stated, the…
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Lisa May Have Lost Her Own Battle with ALS but Won A Battle for ALS Patients
Today’s report on compassion describes it as the resolve to serve others. This article, published by the Schwartz Healthcare Center in Cambridge, Massachusetts, features Victor Furtado, Security Director at NewBridge…
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Compassion Comes in Many Different Forms and Unexpected Settings
According to a recent article in The Faculty Lounge, the opinion of its co-authors is that the long-held belief about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is seriously outdated. ME/CFS is…
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Are Physicians Holding On to an Outdated Belief About Chronic Fatigue Syndrome?