Treatment Development Getting Close for Patients with Form of Adrenoleukodystrophy
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Treatment Development Getting Close for Patients with Form of Adrenoleukodystrophy

Minoryx Therapeutics is on their way to making strides for patients with adrenomyeloneuropathy, also known as AMN, reports Labiotech. They just started their phase II initiative to test patients for…

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Editor’s Choice: Treatments, Methods and Strategies in Coping with Rare Diseases

Happy August Patient Worthy Peeps! This week, we have some awesome posts to keep you up-to-date on some of the latest rare disease developments. There's news on a hopeful possible…

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Dab in Memory of Brave Little Boy Who Fought Adrenoleukodystrophy With a Smile
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Dab in Memory of Brave Little Boy Who Fought Adrenoleukodystrophy With a Smile

In writing for Patient Worthy, we’re privileged to discover some amazing stories of how people live with—and live through—the adversity of having a rare disease such as adrenoleukodystrophy (ALD). Sadly,…

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Teen with Adrenoleukodystrophy (ALD) Celebrates Milestone Birthday with Wild Animals
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Teen with Adrenoleukodystrophy (ALD) Celebrates Milestone Birthday with Wild Animals

Adrenoleukodystrophy (ALD) is a terrible disease - but tell that to Ethan Jeffcoat, who spent his latest birthday playing with a python, alligator and more! ALD is a brain disorder that destroys…

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Help Us Raise Awareness About Adrenoleukodystrophy, or ALD!
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Help Us Raise Awareness About Adrenoleukodystrophy, or ALD!

The word adrenoleukodystrophy doesn't exactly roll off the tongue, does it? Adrenoleukodystrophy (ALD) is an exceptionally rare genetic disease that affects one in 18,000 males. If you're one of those 18,000 people,…

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Spring is for Setting World Records and Raising ALD Awareness
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Spring is for Setting World Records and Raising ALD Awareness

This week is a small win for adrenoleukodystrophy (ALD) awareness and for these mini-bikers. Kevin Bean're and Tom Ford are mini-biking across the country, from Florida to California, to raise awareness…

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