“I Am My Own Best Asset”: Learning to Be Your Own Advocate When Living with a Rare Disease or Chronic Illness

The Danger of Stereotypes There is still a huge stereotype that women are prone to "hysteria." This leads to a general distrust in women's self-reported symptoms. Physicians consciously or unconsciously…

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The Challenge: He is A Father, A Caregiver and A Scientist Trying to Save his Son and Others With ME/CFS or Chronic Fatigue Syndrome

  Ron Davis and his gene-sequencing technologies were mentioned years ago in The Atlantic alongside Elon Musk (SpaceX) and Jeff Bezos of Amazon fame. Since then, Davis has amassed over…

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Inventor of Gene Sequencing Tech Used in the Human Genome Project is Desperate to Save Son With Chronic Fatigue Syndrome
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Inventor of Gene Sequencing Tech Used in the Human Genome Project is Desperate to Save Son With Chronic Fatigue Syndrome

According to a story from F3News, 77 year old Ron Davis has lived a life highlighted by incredible scientific achievement. He leads the lab that played a critical role in…

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Study Shows New Blood Test can Accurately Diagnose Chronic Fatigue Syndrome

Chronic Fatigue Syndrome Chronic fatigue syndrome (CFS) is a rare disease which causes, most notably, persistent fatigue that doesn't improve with rest. It is also sometimes referred to as myalgic…

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Internet-Based Therapy Could Aid Chronic Fatigue Syndrome Patients
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Internet-Based Therapy Could Aid Chronic Fatigue Syndrome Patients

According to a study published by the Journal of Medical Internet research (JMIR), patients diagnosed with chronic fatigue syndrome (CFS) who are treated with cognitive behavioral therapy (CBT) delivered over…

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Chronic Fatigue Syndrome: Debates on Exercise and the Importance of the Patient Voice

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) are interchangeable titles used to describe the same illness. Sometimes this illness is simply referred to as ME/CFS.…

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Parliamentary Debate Highlights Continued Controversy and Misinformation Surrounding CFS/ME
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Parliamentary Debate Highlights Continued Controversy and Misinformation Surrounding CFS/ME

According to a story from The ME Association, a recent debate that came to the floor of the UK parliament highlights the misinformation and deficits in care surrounding children with…

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Sexism and Misdiagnosis Led to Years of Suffering for This Chronic Fatigue Syndrome Patient
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Sexism and Misdiagnosis Led to Years of Suffering for This Chronic Fatigue Syndrome Patient

According to a story from Cosmopolitan, a young woman who we will call Courtney (real name changed for privacy) was diagnosed with chronic fatigue syndrome. However, this diagnosis only occurred…

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An Innovative UK Charity Helps a Woman With Chronic Fatigue Syndrome get Employed for the First Time
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An Innovative UK Charity Helps a Woman With Chronic Fatigue Syndrome get Employed for the First Time

According to a story from Able Magazine, 37 year old Victoria Clutton recently got her first job thanks to the efforts of the UK nonprofit organization ASTRiiD (Available Skills for Training,…

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The State of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Research in 2018
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The State of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Research in 2018

Myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) has been a controversial condition ever since it was first diagnosed and recognized. Some uninformed doctors still believe that the syndrome is a psychological…

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