Three Young People With Chronic Illness Talk About the Challenges They Face
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Three Young People With Chronic Illness Talk About the Challenges They Face

  Three people with an eye on the future talk about their innermost feelings and the fact that their lives may be interrupted at any time by their chronic illness.…

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The ADA is 30 Years Old. What Does it Mean to Young People with Disabilities?
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The ADA is 30 Years Old. What Does it Mean to Young People with Disabilities?

According to a story from Youth Today, the Americans with Disabilities Act (ADA) was first passed 30 years ago, in 1990. This historic law helps protect people that live with…

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Exploring A Lung Disease So Rare There Are Only 7 Diagnoses: NEK10 Case Study
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Exploring A Lung Disease So Rare There Are Only 7 Diagnoses: NEK10 Case Study

When the 31-year-old woman showed up to Massachusetts General Hospital with a nasty respiratory infection, she was somewhat used to it. In fact, she had been plagued with respiratory problems…

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NTM Info & Research Creates Educational Tool for Patients with Bronchiectasis
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NTM Info & Research Creates Educational Tool for Patients with Bronchiectasis

According to an article in the Baker City Herald, a non-profit organization has launched a website designed to support and educate patients with bronchiectasis. NTM Info & Research advocates for patients…

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Handling Rare Diseases and COVID-19: National Organization for Rare Disorders Reminds You to Stay Strong
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Handling Rare Diseases and COVID-19: National Organization for Rare Disorders Reminds You to Stay Strong

  If you're worried or anxious because of COVID-19, you're not alone. If wondering about the intersection of rare diseases and COVID-19 only increases that anxiety, well, we're with you…

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