Indie songwriter and singer Sufjan Stevens recently posted on, Tumblr, his favorite media platform, that he has been diagnosed with Guillain-Barré syndrome (GBS). Sufjan is now in the hospital…
In January 2023, 23-year-old Angel Anthony Cortez was admitted to the hospital. His health had rapidly deteriorated over the previous days and his family was concerned. Following his admission,…
In 1956, Dr. C. Miller Fisher first described Miller Fisher syndrome after seeing three patients who presented with absent tendon reflexes, ataxia (impaired coordination), and eye muscle weakness. Eventually,…
Simeon Fryer was elected captain of the Texas A&M University Corpus Christi (TAMUCC) Islanders men’s basketball team for the 2022-23 season – and it’s a job that he takes very…
Ryan Smith has always been tenacious in pursuing his goals. One of his most important goals? Supporting his family and his community. As a lieutenant with the Stillwater Fire Department,…
Happy Thursday! This week, we have details on the beginnings of a new trial testing CRISPR gene editing for Duchenne muscular dystrophy, how parents can play a critical role in…
Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…
Postnatal Zika virus can cause other complications and health issues for those affected. According to Neurology Advisor, one such complication is Guillain-Barré syndrome (GBS). Researchers believe that GBS following postnatal…
We’ve reached the month of May, and you know what that means – it is Guillain-Barre syndrome (GBS) and Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Awareness Month! During this month, the…
According to MedPage Today, the FDA sent a letter to the manufacturer of the Johnson & Johnson COVID-19 vaccine on Monday containing a warning about its link to Guillain-Barre syndrome…
Intravenous immunoglobulin (IVIG) has been used to treat autoimmune conditions for years, and it is now being explored as a treatment for certain neurological diseases. Recent research has investigated IVIG…
The month of May is recognized as Guillain-Barré syndrome (GBS) and chronic inflammatory demyelinating polyneuropathy (CIDP) awareness month, a time set aside to spread awareness about these rare conditions among…
In a case study published on dovepress.com, a 17 year old girl diagnosed with COVID-19 developed Guillain-Barre syndrome, a neurological disease causing muscle weakness, as her symptoms progressed. While COVID-19…
William Frackrell’s desire to serve his country was born out of his years as a boy scout and his military career. Then, according to a FOX 13 exclusive with William’s…
Many people have questions about the COVID-19 vaccine, a number of them pertaining to the speed at which it was developed and approved. Rare disease patients are no exceptions. Barbra…
Xavier Alford told BBC News how he vividly recalls the day, twelve years ago, when he was told by his doctor that he had a very rare disease. His doctor…
Sean Boyle is a PhD candidate at Emory University. He just signed up to participate in a trial for a coronavirus vaccine when he doesn't know the risks. That's because…
Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare disease that affects the nervous system. It causes peripheral nerves and nerve roots (the sites where nerves are attached to the central…
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