Editor’s Choice: IDF Sessions on CGD, IPF Progress and FDA Approval

Happy Friday Patient Worthians! You might notice that the headline has a lot of acronyms in it... ah, welcome to the rare disease world! We DO have answers for what all of that…

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The BEST Method of Explaining IPF Oxygen Therapy to Patients is FREE
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The BEST Method of Explaining IPF Oxygen Therapy to Patients is FREE

When your lungs aren’t getting enough oxygen, it’s a real problem. A big problem, especially, when a person is living with idiopathic pulmonary fibrosis (IPF). But that’s not the only…

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SOS… Can Someone PLEASE Explain Effectiveness of Esbriet for IPF?
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SOS… Can Someone PLEASE Explain Effectiveness of Esbriet for IPF?

I read a rather confusing article about Esbriet, the first FDA-approved treatment for idiopathic pulmonary fibrosis (IPF), and I’d sincerely appreciate your help to make sense of it all. Let me…

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Is There a Link Between IPF and Treatment for Breast Cancer?
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Is There a Link Between IPF and Treatment for Breast Cancer?

I have that sinking feeling… And it’s really starting to bother me. I’ve never said this openly before but here goes: My gut tells me there’s a strange link between…

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Scientists Insist Exercise May Change Course of IPF Progression
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Scientists Insist Exercise May Change Course of IPF Progression

If you or your loved one is living with idiopathic pulmonary fibrosis (IPF), scientists have proven that there is a link between exercise and longevity—especially for people who have IPF.…

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The Amazing Reason Why a Man Will Climb 45 Flights of Stairs After a Lung Transplant
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The Amazing Reason Why a Man Will Climb 45 Flights of Stairs After a Lung Transplant

Stephen Mitchell was losing his fight with IPF about five years ago. He began running because he did not want to die of a lung disease, like his father. Although…

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Why Everyone Needs to Understand These Important But Simple Facts About IPF
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Why Everyone Needs to Understand These Important But Simple Facts About IPF

After watching a rather “dry” physician, a pulmonologist (I presume) on a video (you can watch it here), I felt like there was more to be had. This goes beyond…

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Check Out This Interactive New Resource for IPF Patients
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Check Out This Interactive New Resource for IPF Patients

One of the hardest parts of being diagnosed with a strange condition you’ve never heard of—like Idiopathic Pulmonary Fibrosis (IPF)—is just getting your arms around what the hell it is…

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Got Five Minutes? Check Out This Interactive Program on IPF
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Got Five Minutes? Check Out This Interactive Program on IPF

Treading water is difficult. Sometimes, that’s how it feels navigating a new diagnosis. It’s like trying to keep your head above water in a vast, foreign ocean, as waves of information…

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Can Learning About a Shark’s Immune System Lead to an IPF Cure?
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Can Learning About a Shark’s Immune System Lead to an IPF Cure?

Sharks have a fascinating immune system (and as far as we know, they don't develop idiopathic pulmonary fibrosis (IPF). They can repair wounds and injuries quickly. Researchers even believe that…

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Outstanding Country Music Star Shares His Valuable IPF Story of Inspiration
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Outstanding Country Music Star Shares His Valuable IPF Story of Inspiration

Here are some highlights of an inspirational article I'd like to share... Boehringer Ingelheim, a pharmaceutical company specializing in rare pulmonary diseases, headquartered in Germany, is stepping up to the…

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Buy Your Tickets Now for a PF Broadway Extravaganza Feb. 27!
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Buy Your Tickets Now for a PF Broadway Extravaganza Feb. 27!

Broadway Belts for Pulmonary Fibrosis is a yearly musical and comedy fundraiser to fight pulmonary fibrosis (PF). Created 7 years ago to honor the memory of Associated Press theater critic…

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Straight Talk: One IPF Woman’s Response to “You Are So Strong”
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Straight Talk: One IPF Woman’s Response to “You Are So Strong”

Ohhh, I've got a spark for discussion. I’m verklempt after reading a post from a 30-something woman who is living with idiopathic pulmonary fibrosis (IPF). First, it breaks my heart…

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