The Ability to Monitor Lung Function From Home is Overwhelmingly Popular, Survey Finds
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The Ability to Monitor Lung Function From Home is Overwhelmingly Popular, Survey Finds

An online patient survey has found that 96% of pulmonary fibrosis patients, and 93% of cystic fibrosis patients, support being able to monitor their lung function at home between visits…

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New Campaign Encourages Idiopathic Pulmonary Fibrosis Patients to Keep Exercising
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New Campaign Encourages Idiopathic Pulmonary Fibrosis Patients to Keep Exercising

According to a story from The Irish Times, a new campaign is encouraging people with the rare lung condition idiopathic pulmonary fibrosis to keep exercising. The campaign is centered around…

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Nintedanib Gets Fast Track Designation for the Treatment of Scleroderma
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Nintedanib Gets Fast Track Designation for the Treatment of Scleroderma

According to a story from BioSpace, the U.S. Food and Drug Administration has given Fast Track designation for nintedanib, which is undergoing testing for the treatment of systemic sclerosis with…

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A Study From Yale University is Helping Solve The Mystery of Idiopathic Pulmonary Fibrosis
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A Study From Yale University is Helping Solve The Mystery of Idiopathic Pulmonary Fibrosis

According to a story from seas.yale.edu, a recent study conducted under the supervision of Yale University is providing new clues for the underlying cause of idiopathic pulmonary fibrosis. The researchwea…

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Multiple Rare Disease Drugs Just Got Limited Coverage in British Columbia
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Multiple Rare Disease Drugs Just Got Limited Coverage in British Columbia

According to a story from the Vancouver Sun, five rare disease drugs just received coverage in British Columbia. The funding comes from savings accumulated thanks to a recent agreement that…

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Researchers Have Discovered The Genetic Cause of Idiopathic Pulmonary Fibrosis
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Researchers Have Discovered The Genetic Cause of Idiopathic Pulmonary Fibrosis

According to an article from news-medical.net, a group of researchers from the Telomere and Telomerase Group at the Spanish National Cancer Research Centre have been able to pin down the…

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Model Katie Price Will Run London Marathon To Support Idiopathic Pulmonary Fibrosis Awareness
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Model Katie Price Will Run London Marathon To Support Idiopathic Pulmonary Fibrosis Awareness

Katie Price, a former British model, has accepted the challenge of running the next London marathon with intent to fundraise for IPF, idiopathic pulmonary fibrosis, a disease her mother was…

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One Million Dollar Payday to be Rewarded for IPF Innovation
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One Million Dollar Payday to be Rewarded for IPF Innovation

A wealthy do-gooder is championing Idiopathic Pulmonary Fibrosis (IPF). No, it's not Tony Stark (a.k.a. Ironman). But there is a mega-force super power uniting global innovators, researchers, and healthcare entrepreneurs…

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Philanthropic Competition Awards Innovators for Plans to Help Treat Rare Lung Disease
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Philanthropic Competition Awards Innovators for Plans to Help Treat Rare Lung Disease

Who said helping cure and treat rare diseases couldn't be fun?! Last week, Three Lake Partners - a venture firm that invests in healthcare and quality-of-life solutions for patients dealing…

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Support Groups Need Support, Too! Check Out This Funding Source for Idiopathic Pulmonary Fibrosis Groups
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Support Groups Need Support, Too! Check Out This Funding Source for Idiopathic Pulmonary Fibrosis Groups

For the estimated 100,000 to 200,000 people in the US diagnosed with idiopathic pulmonary fibrosis (IPF), finding a community is important. IPF is a rare lung disease, which you can…

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These Researchers Have Discovered The Truth About Idiopathic Pulmonary Fibrosis
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These Researchers Have Discovered The Truth About Idiopathic Pulmonary Fibrosis

New research is helping experts understand the underlying causes of idiopathic pulmonary fibrosis on the molecular scale. When solving any problem, disease included, it is best to start by understanding…

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Living with Pulmonary Fibrosis? There’s an App for That!
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Living with Pulmonary Fibrosis? There’s an App for That!

MonARC Bionetworks and the Pulmonary Fibrosis Foundation have partnered to bring the IPF community the PF Health app - a monumental partnership that will bring clinical research opportunities directly to…

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Survey Says: European Doctors Need to Learn More About Idiopathic Pulmonary Fibrosis Treatment
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Survey Says: European Doctors Need to Learn More About Idiopathic Pulmonary Fibrosis Treatment

If there was a proven medication to slow the progress of a chronic and deadly lung disease with no cure, why wouldn't you take it? That's the question that researchers…

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Have Idiopathic Pulmonary Fibrosis? Experts Recommend High-Dose Flu Vaccine this Winter
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Have Idiopathic Pulmonary Fibrosis? Experts Recommend High-Dose Flu Vaccine this Winter

Getting a cold or flu is bad enough for most "healthy" people, but if you have a progressive, incurable lung disease, such as idiopathic pulmonary fibrosis (IPF), cystic fibrosis, COPD,…

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A Path Leads to an IPF Breakthrough: British Scientists Discover Lung Fibrosis Gene
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A Path Leads to an IPF Breakthrough: British Scientists Discover Lung Fibrosis Gene

Health scientists at the University of Leicester and University of Nottingham have heralded the discovery of a gene associated with lung fibrosis, such as idiopathic pulmonary fibrosis (IPF), as "a…

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Oklahoma Researchers May Have the Missing Link to Pulmonary Fibrosis
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Oklahoma Researchers May Have the Missing Link to Pulmonary Fibrosis

When it comes to treating a chronic and serious disease like idiopathic pulmonary fibrosis (IPF), sometimes you have to fight fire with fire. Or, as in this case micro fibrosis…

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Could You Be Saved By a Scan? How You Can Detect and Catch the #1 Killer During Healthy Lung Month
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Could You Be Saved By a Scan? How You Can Detect and Catch the #1 Killer During Healthy Lung Month

They look perfectly healthy. There's no outward sign of disease. But for millions of Americans, chronic and debilitating conditions such as idiopathic pulmonary fibrosis (IPF) could be lurking inside. October…

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Researchers Target a Cure for Cystic Fibrosis, IPF, and Other Chronic Lung Diseases
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Researchers Target a Cure for Cystic Fibrosis, IPF, and Other Chronic Lung Diseases

Researchers who study rare diseases often look at what's going wrong in the body in order to find a treatment. But the team studying rare lung diseases at the Perelman School…

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Are You Attending the Pulmonary Fibrosis Foundation Summit 2017 This November?
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Are You Attending the Pulmonary Fibrosis Foundation Summit 2017 This November?

The Pulmonary Fibrosis Foundation (PFF) is hosting their biennial summit this November! Pulmonary fibrosis covers 200 different conditions that include sarcoidosis, IPF, scleroderma and other rare diseases. The conditions are characterized by…

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