According to a story from BBC, John Mason, age 80, is one of over 2,000 people in Wales who currently have idiopathic pulmonary fibrosis (IPF), a rare and ultimately lethal…
A report on newsmedical.net details a major grant awarded for the research of idiopathic pulmonary fibrosis (IPF). The grant totals $8.9 million, aiming to fund a program for several years.…
The National Institutes of Health (NIH) have granted the University of Alabama at Birmingham $8.9 million to fund research into an investigational drug for idiopathic pulmonary fibrosis. You can read…
According to a story from EurakAlert!, a group of researchers from the University of Pennsylvania School of Medicine have achieved a major breakthrough for idiopathic pulmonary fibrosis research that will…
CHICAGO, July 19, 2018 – The Pulmonary Fibrosis Foundation (PFF) and monARC Bionetworks have partnered to create the mobile app, PF Health, for individuals living with pulmonary fibrosis (PF). PF Health, now available on Apple App Store (iOS 9.0 or…
According to EurekAlert! Science News, researchers have pinpointed the certain immune cell that further inflames a heart attack. The immune cell, however, comes with good intentions of trying to fix…
According to a story from CheckOrphan, Express Scripts has prepared a Rare Conditions Care Value (RCCV) program. This program is designed to help make the diagnosis and treatment process for…
According to Pulmonary Fibrosis News, a study with mice showed that a certain compound found in plants, parthenolide, is associated with a sizable reduction in lung fibrosis and the subsequent inflammatory…
According to Chipley Bugle, the University of Florida Health Center is joining the Pulmonary Fibrosis Foundation’s Care Center Network. UF joins 60 other centers in the world with high level knowledge…
According to PRNewswire, Express Scripts announced a new program to benefit people living with rare diseases on May 31st. The program, called Second Opinion is part of the company’s larger…
According to a story from CNN, substitute teacher Cynthia Tisdale was widely admired by her family and friends. Cynthia was murdered in the Santa Fe High School shooting on May…
According to a story from HSC News, the Hastings Foundation recently gave a gift of $12.5 million for the USC Hastings Center for Pulmonary Research, a subdivision of the University…
Reviva Pharmaceuticals Inc. (Reviva) announced on April 10th that it received Orphan Drug Designation from the United States Food and Drug Administration (FDA) for one of its experimental candidates. The…
According to a story from The Irish Times, Noreen O'Carroll can vividly remember when she first received the news that she had been diagnosed with idiopathic pulmonary fibrosis. It was…
An online patient survey has found that 96% of pulmonary fibrosis patients, and 93% of cystic fibrosis patients, support being able to monitor their lung function at home between visits…
According to a story from The Irish Times, a new campaign is encouraging people with the rare lung condition idiopathic pulmonary fibrosis to keep exercising. The campaign is centered around…
According to a story from BioSpace, the U.S. Food and Drug Administration has given Fast Track designation for nintedanib, which is undergoing testing for the treatment of systemic sclerosis with…
According to a story from LiveScience, nine dentists and dental workers in the state of Virginia have been diagnosed with idiopathic pulmonary fibrosis, a rare and dangerous lung disease. All…
According to a story from seas.yale.edu, a recent study conducted under the supervision of Yale University is providing new clues for the underlying cause of idiopathic pulmonary fibrosis. The researchwea…
According to a story from the Vancouver Sun, five rare disease drugs just received coverage in British Columbia. The funding comes from savings accumulated thanks to a recent agreement that…
According to an article from news-medical.net, a group of researchers from the Telomere and Telomerase Group at the Spanish National Cancer Research Centre have been able to pin down the…
Katie Price, a former British model, has accepted the challenge of running the next London marathon with intent to fundraise for IPF, idiopathic pulmonary fibrosis, a disease her mother was…
A wealthy do-gooder is championing Idiopathic Pulmonary Fibrosis (IPF). No, it's not Tony Stark (a.k.a. Ironman). But there is a mega-force super power uniting global innovators, researchers, and healthcare entrepreneurs…
Who said helping cure and treat rare diseases couldn't be fun?! Last week, Three Lake Partners - a venture firm that invests in healthcare and quality-of-life solutions for patients dealing…
For the estimated 100,000 to 200,000 people in the US diagnosed with idiopathic pulmonary fibrosis (IPF), finding a community is important. IPF is a rare lung disease, which you can…
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