Unique Class of Drugs Shows Potential in Treating Idiopathic Pulmonary Fibrosis

According to a story from Medical Xpress, a collaborative team of scientists from UT Health San Antonio, the Mayo Clinic, and the Wake Forest School of Medicine, have recently released…

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The NIH Has Granted $8.9 million to Researchers Investigating a Drug For Idiopathic Pulmonary Fibrosis
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The NIH Has Granted $8.9 million to Researchers Investigating a Drug For Idiopathic Pulmonary Fibrosis

The National Institutes of Health (NIH) have granted the University of Alabama at Birmingham $8.9 million to fund research into an investigational drug for idiopathic pulmonary fibrosis. You can read…

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Scientists Have Managed to Create a Mouse Model for Idiopathic Pulmonary Fibrosis
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Scientists Have Managed to Create a Mouse Model for Idiopathic Pulmonary Fibrosis

According to a story from EurakAlert!, a group of researchers from the University of Pennsylvania School of Medicine have achieved a major breakthrough for idiopathic pulmonary fibrosis research that will…

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Pulmonary Fibrosis Foundation Launches New PF Health App: Connect Patients to Resources, Providers and Researchers

CHICAGO, July 19, 2018 – The Pulmonary Fibrosis Foundation (PFF) and monARC Bionetworks have partnered to create the mobile app, PF Health, for individuals living with pulmonary fibrosis (PF).  PF Health, now available on Apple App Store (iOS 9.0 or…

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This New Program Can Help Make Life Easier for Rare Disease Patients
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This New Program Can Help Make Life Easier for Rare Disease Patients

According to a story from CheckOrphan, Express Scripts has prepared a Rare Conditions Care Value (RCCV) program. This program is designed to help make the diagnosis and treatment process for…

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Express Scripts Makes Diagnosis Easier with Second Opinion
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Express Scripts Makes Diagnosis Easier with Second Opinion

According to PRNewswire, Express Scripts announced a new program to benefit people living with rare diseases on May 31st. The program, called Second Opinion is part of the company’s larger…

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The University of Southern California’s Keck School of Medicine Just Got Funding to Research Rare Lung Diseases
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The University of Southern California’s Keck School of Medicine Just Got Funding to Research Rare Lung Diseases

According to a story from HSC News, the Hastings Foundation recently gave a gift of $12.5 million for the USC Hastings Center for Pulmonary Research, a subdivision of the University…

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The Ability to Monitor Lung Function From Home is Overwhelmingly Popular, Survey Finds
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The Ability to Monitor Lung Function From Home is Overwhelmingly Popular, Survey Finds

An online patient survey has found that 96% of pulmonary fibrosis patients, and 93% of cystic fibrosis patients, support being able to monitor their lung function at home between visits…

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New Campaign Encourages Idiopathic Pulmonary Fibrosis Patients to Keep Exercising
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New Campaign Encourages Idiopathic Pulmonary Fibrosis Patients to Keep Exercising

According to a story from The Irish Times, a new campaign is encouraging people with the rare lung condition idiopathic pulmonary fibrosis to keep exercising. The campaign is centered around…

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Nintedanib Gets Fast Track Designation for the Treatment of Scleroderma
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Nintedanib Gets Fast Track Designation for the Treatment of Scleroderma

According to a story from BioSpace, the U.S. Food and Drug Administration has given Fast Track designation for nintedanib, which is undergoing testing for the treatment of systemic sclerosis with…

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A Study From Yale University is Helping Solve The Mystery of Idiopathic Pulmonary Fibrosis
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A Study From Yale University is Helping Solve The Mystery of Idiopathic Pulmonary Fibrosis

According to a story from seas.yale.edu, a recent study conducted under the supervision of Yale University is providing new clues for the underlying cause of idiopathic pulmonary fibrosis. The researchwea…

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Multiple Rare Disease Drugs Just Got Limited Coverage in British Columbia
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Multiple Rare Disease Drugs Just Got Limited Coverage in British Columbia

According to a story from the Vancouver Sun, five rare disease drugs just received coverage in British Columbia. The funding comes from savings accumulated thanks to a recent agreement that…

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Model Katie Price Will Run London Marathon To Support Idiopathic Pulmonary Fibrosis Awareness
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Model Katie Price Will Run London Marathon To Support Idiopathic Pulmonary Fibrosis Awareness

Katie Price, a former British model, has accepted the challenge of running the next London marathon with intent to fundraise for IPF, idiopathic pulmonary fibrosis, a disease her mother was…

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