No one likes shots. We are talking needle shots. And no one likes hereditary angioedema attacks. So it’s no secret that people having an HAE attack don’t want to give…
In this blog posted to the Michael J. Fox Foundation for Parkinson's Research website, retired attorney Allison London, who also has dystonia, talks about the gifts that come with having…
Everyone deserves to have a hero. Whether it's a fictional one that fights baddies or a gentle giant who use to tuck you in at night and read you bedtime…
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On August 17, 1999, Ian Kent woke up with a gnarled body. "Two years later I learned to walk again," he told the Toronto Star. Kent had been a competitive…
Here’s the scenario: You or someone you love has just been diagnosed with high cholesterol. You’re probably on overload trying to digest what this life-threatening condition means, the impact it…
Serogroup B Meningococcal disease (or Men B): is a serotype of meningitis that is common in the US and can, take families by surprise. The viruses victims can start feeling…
In January 2003, Allen should have been in the best shape of his life. After all, he’d started basic training just a month prior in an effort to become…
Parents who love their children can appreciate when treatments are available to bring hope and healing when their young ones are sick... On August 17, 2015, one more ray of…
Like many with hereditary angioedema, this family didn’t know the disease was affecting several of its members until one member, Ken, was diagnosed at 25 The Telegram reports. From there,…
You see them everywhere--although they look out of place in the grocery store, or at the movies, or--even worse--grooving in dance club. Why are they not in school? They're teachers,…
We all know the classic yoga "type": thin, white, thin, "new-age," thin, Gumby-like limbs. Did we mention thin? Over the years, yoga (especially the cult-ish torture/nirvana that is hot yoga)…
If you’re one of the estimated 1 in 25,000 to 50,000 people in the U.S. living with common variable immunodeficiency (CVID), regular IV injections are a fact of life. Because…
Recent twitter developments in the Chronic community have involved the possible discovery of a new mascot. Karl Austin (@Porkchop275) came across a picture of a shark, and after determining that…
When the House passed the 21st Century Cures Act in a groundbreaking 344-77 vote, the decision felt like a defibrillator, deploying life-saving shocks to the healthcare system. Critics may…
Look out WebMD. Google's about to leave you twitching in the dust... Would you believe one in 20 Google searches are health-based? Ok, yeah, probably not that far-fetched, BUT... don't you…
Immunodeficiency’s can cause weight gain. That’s no secret. But oftentimes, Common Variable Immunodeficiency (CVID) patients are surprised when they begin gaining weight. CVID is characterized by low antibody levels and…
Dystonia May Slow Her Body, But It Can’t Stomp Her Spirit Few times in life are as exciting—or as hectic—as the last days of high school. Between friends and classes,…
Before a hit and run driver struck Pat Brogan as he rode his bicycle, he'd never heard of dystonia, a brain disorder that causes severe muscle cramping and pain. But…
As summer winds down, many of us are scrambling to get onnnnnnne more vacation in. Whether it’s a day on the beach, a picnic in the park, or a road…
The Working Dog: Service Dogs Go for the Gold While the 2016 Presidential campaigns get underway, Americans are taking to the polls to vote for their favorite finalist in the…
Great Ganja! Pot Patch On the Way...And We're Not Blowing Smoke. Zynerba Pharmaceuticals is working towards patches to deliver cannabis-derived chemicals straight to the bloodstream. But before all the Mary Jane maniacs get…
Imagine being worried because your giggling 6 month old son won't eat, is constipated, and drastically losing weight. The doctors tell you he has a rare disease that affects all of…
Ahh, the miracle of life. Though it’s a beautiful thing, pregnancy can become an increasingly painful thing for those with arthritis and related conditions. And although ankylosing spondylitis occurs mostly…
On a press release reported from BusinessWire, the Cystinosis Research Foundation, CRF, awarded unparalleled grants of $1,022,879 to research institutions making it possible to further investigate innovative treatments for cystinosis.…
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