Over 200 Rare Diseases to be Included in Genomics England Research Study
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Over 200 Rare Diseases to be Included in Genomics England Research Study

Genomics is revolutionizing healthcare processes, offering the potential to enhance the lives of numerous individuals by enabling the early detection of treatable disorders and providing lifesaving therapies. Every year, thousands…

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Ryan’s Life Changed from being a Fire Fighter to Being Diagnosed with Creutzfeldt-Jakob Disease

Dozens of Ryan Wilson Palmer’s family and friends recently celebrated an early birthday after he received a devastating diagnosis of Creutzfeldt-Jakob disease. A few months ago 49-year-old Ryan Palmer of…

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Patients and Doctors Are Pressuring Health Insurance Companies Online in Order to Receive Proper Treatment
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Patients and Doctors Are Pressuring Health Insurance Companies Online in Order to Receive Proper Treatment

  Social media has become a vehicle for customer complaints and the companies are listening. Estimates are that almost two-thirds of dissatisfied customers have received a response to their online…

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China Expands Medical Insurance Coverage to Improve Access and Affordability for Rare Disease Drugs
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China Expands Medical Insurance Coverage to Improve Access and Affordability for Rare Disease Drugs

Unfortunately, gaining access to care within the rare disease space can be difficult. There is often lesser education and awareness about rare conditions, less research performed, and poorer access to…

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