ERN-RITA Enables Virtual Health Consultations With European Experts
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ERN-RITA Enables Virtual Health Consultations With European Experts

Note: this story was originally published by HAE Junior, a Patient Worthy partner Interview with Malena Vetterli from the European Reference Network (ERN-RITA) for rare immunodeficiencies, autoinflammatory and autoimmune diseases.…

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Achieving Optimal Patient Outcomes in Chronic Pain Management Across Multiple Treatments: Part Two
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Achieving Optimal Patient Outcomes in Chronic Pain Management Across Multiple Treatments: Part Two

Written by Sumeet Maniar, CEO, WellBrain Continued From Part One Monitoring Adherence to Non-Opioid Treatments Given the links between chronic pain and mental health, a large part of managing chronic…

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Virginia Tech’s Carilion School of Medicine Has Put a Special Focus on Rare Disease

Currently, 95% of rare diseases don't have an effective treatment. Progress is being made, but there is just so much ground to cover in rare disease research. Studying rare diseases…

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Achieving Optimal Patient Outcomes in Chronic Pain Management Across Multiple Treatments: Part One
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Achieving Optimal Patient Outcomes in Chronic Pain Management Across Multiple Treatments: Part One

Written by Sumeet Maniar, CEO at WellBrain In the U.S., 60 percent of all adults have a chronic disease, and 40 percent have two or more. Chronic diseases, which often…

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Have You Ever Been Denied a Diagnosis And Told That Your Pain is Psychosomatic? Part Two

Note: This is part two of a two part story. Don't forget to go back and read part one! Meghan O’Rouke, the author of the NYT best-selling book Invisible Kingdom,…

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The Nanopore Sequencing Test Reduces Diagnosis From Decades to Days for Multiple Rare Disorders

Researchers from Australia’s Garvan Institute have joined with collaborators in Israel and the UK in identifying neuromuscular and neurological genetic diseases that have been difficult to diagnose due to the…

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Looking at the Histopathology Associated with Monoclonal Gammopathy of Renal Significance
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Looking at the Histopathology Associated with Monoclonal Gammopathy of Renal Significance

According to a recent article, a new study looked into the histopathologic spectrum of patients with monoclonal gammopathy of renal significance (MGRS). Monoclonal Gammopathy of Undetermined Significance (MGUS) Monoclonal gammopathy…

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Trialbee and ERGOMED Have Partnered to Recruit Patients for New Rare Disease Innovation Center
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Trialbee and ERGOMED Have Partnered to Recruit Patients for New Rare Disease Innovation Center

According to a recent article, Trialbee and ERGOMED have partnered to become the platform for patient recruitment for their new Rare Disease Innovation Center. Trialbee Trialbee is the leading platform…

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