Acknowledgement: This poem, originally written by Olivia Thompson, was provided to Patient Worthy by our friends at Elephants & Tea. To see the original, please click here. One welcomes a…
Immunotherapy, once considered a niche treatment, has rapidly become a central pillar in the fight against cancer. As detailed in a recent article from Becker’s Hospital Review, this innovative approach…
A groundbreaking study has demonstrated that gene therapy can successfully restore hearing in patients with hereditary deafness, offering new hope for individuals affected by genetic forms of hearing loss. The…
A U.S. House of Representatives oversight panel has sharply criticized the Health Resources and Services Administration (HRSA) following the release of a report revealing serious shortcomings in the country’s organ…
“I have to be dying”, I said earnestly to my husband for the second time that year, “at the very least, I don’t think there is much more pain I…
A groundbreaking study has revealed that the balance of metabolites produced by gut microbes (measured from a simple stool sample) can predict the short-term risk of death for critically ill…
The concept of “food as medicine” has gained significant traction in recent years, and for good reason: mounting evidence shows that nutrition is a powerful tool in both the prevention…
June 2025 marked a month of significant progress in cancer care, as the FDA approved several new therapies and treatment combinations across a range of cancer types. As reported by…
Recent research highlights a significant connection between eosinophilic gastrointestinal diseases (EGIDs) and atopic conditions such as asthma, eczema, and allergic rhinitis. EGIDs, which include disorders like eosinophilic esophagitis, gastritis, and…
Editor's Note: This article was originally published on 7/11/23 and is being republished in an ongoing effort by Patient Worthy to raise awareness of COPD. Tobacco consumption has been heavily…
Saarland University’s medical team, led by Professor Bergita Ganse, has discovered an entirely new approach for monitoring the healing of bone fractures through measuring blood supply to the tissue at…
For most families, a sunny day is a source of joy, but for the family of five-year-old Evie-Rose, sunlight brings distress and fear. As was reported in the Scottish Sun,…
A recent research article in ScienceDirect.com details a breakthrough in visualizing the rapid, complex movements of proteins using high-speed atomic force microscopy (HS-AFM). This cutting-edge imaging technology allows scientists to…
A recent case report has brought attention to a rare but potentially life-threatening cause of heart attack: spontaneous coronary artery dissection (SCAD) in a young woman without classic risk factors…
A recently published case report has shed light on an uncommon cause of abdominal pain in adults: small bowel intussusception due to a benign tumor known as a lipoma. As…
A groundbreaking clinical milestone has been reached in gastroenterology with the publication of a first-in-human study evaluating a novel spray gel for the treatment of ulcers following endoscopic submucosal dissection…
In a remarkable stride toward personalized cancer treatment, scientists have developed a groundbreaking test designed to predict whether individual patients will respond to chemotherapy or develop resistance. According to Bioengineering.com,…
Editor's Note: This article was originally published by Patient Worthy on 6/7/2017, and is being republished due to current NASH/MASH awareness efforts. If you would like to share your story…
I often find myself initially stuck on where to start when telling our story. I say “our” because that’s the truth of this rare disease journey: everyone who touches Natalie’s…
In a moving story of resilience and hope, a 10-year-old patient is embracing a new lease on life after receiving a heart transplant, seen as a medical miracle that has…
The world of healthcare is changing rapidly, and technology is at the heart of its evolution. The latest innovation making waves is an AI-powered medical receptionist that’s not only efficient…
In a remarkable demonstration of medical innovation, a Florida-based surgeon recently performed a robotic surgery on a patient located over 7,000 miles away. This groundbreaking procedure highlights the immense potential…
Cure Rare Disease (CRD), a pioneering nonprofit biotechnology organization, has announced the addition of new scientific and strategic leaders, marking a significant step forward in its mission to develop therapies…
In the vast world of podcasts, “Wait, How Do You Spell That?” stands out as a beacon for patients, families, and advocates navigating the complex, often isolating journey of rare…
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