Amy’s Acromegaly Story: Part 1
My name is Amy, and I’m a 37 year old single mom of two beautiful girls, ages 8 and 13. I work full time as a business analyst for a…
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Amy’s Acromegaly Story: Part 1
- Rare Disease News
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Midatech Pharma Gets Verbal Approval For MTD201 Continued Development
Midatech Pharma just received verbal confirmation from Polish regulators to conduct the first European in-human study for a treatment that could potential aid those with carcinoid cancer and acromegaly, reported…
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Midatech Pharma Gets Verbal Approval For MTD201 Continued Development
Woman With Acromegaly Found Others Like Her
In 1994, Deanna Babiuk-Black began to feel sick very frequently. Her typical care-free personality was being challenged with illness and her personal words to live by "take a negative and…
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Woman With Acromegaly Found Others Like Her
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What Happens When Acromegaly is Right In Front of Your Nose?
When is acromegaly like a scene from a movie? I know it's a stretch, but bear with me. I rarely go to the movies, you know, in a movie theater.…
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What Happens When Acromegaly is Right In Front of Your Nose?
The First International Acromegaly Conference in Honor of Acromegaly Awareness Day
It is Patient Worthy’s pleasure to report on the first International Acromegaly conference which brought together acromegaly support groups from East and West Canada,- The Vancouver and Atlantic Acromegaly support…
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The First International Acromegaly Conference in Honor of Acromegaly Awareness Day
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Bring Out Your Shoes! November 1st is Acromegaly Awareness Day!
Too much of a good thing can be dangerous. For people with acromegaly, a rare disease caused by too much growth hormone (GH), an excess of this otherwise helpful growth factor can…
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Bring Out Your Shoes! November 1st is Acromegaly Awareness Day!
Don’t Miss the National/International Acromegaly Conference!
Come to Canada to learn and talk more about acromegaly among specialists, professionals, advocates, patients and spouses! COST Acromegaly Patients & Spouses: FREE For all other attendees: $200.00 no refund…
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Don’t Miss the National/International Acromegaly Conference!
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Playing Doctor: Reasoning from Symptoms to Acromegaly
We’ve all heard the expression, “A picture is worth a thousand words.” I once used it as an excuse to get out of drawing a new cover to Beowulf as…
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Playing Doctor: Reasoning from Symptoms to Acromegaly
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Bestie Saves Life With An Unexpected Acromegaly Diagnosis
It pays to have a friend who's a research endrocrinologist—especially when you have a rare and little-known disease like acromegaly. For Oregon-based teacher, Betsy Whispell, the friendship was a lifesaver. She…
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Bestie Saves Life With An Unexpected Acromegaly Diagnosis
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Saved by Selfies: Doc Uses Photos to Diagnose Rare Case of Acromegaly
Among the many uses of social media, medical diagnosis for rare diseases, for everything from acromegaly to Zellweger spectrum syndromes, may not be the first that comes to mind. But…
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Saved by Selfies: Doc Uses Photos to Diagnose Rare Case of Acromegaly
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Acromegaly? There’s an App for That.
Growth spurts? As an overachieving parent, I couldn’t get enough of them. I was the kind of mom who wanted to remember each and every step toward adulthood. I didn’t…
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Acromegaly? There’s an App for That.
Quick and Informative At-Home Online Acromegaly Seminar
Learn more about acromegaly at the most low maintenance seminar of all time—on your own computer! From 1:00PM-2:00PM EST on Wednesday, August 23, 2017, sign up to hear Dr. Adriana G.…
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Quick and Informative At-Home Online Acromegaly Seminar
Don’t Miss This Acromegaly Webinar Next Week
If you or a loved one has acromegaly or suspected acromegaly, then this is a free webinar you won't want to miss. The webinar is hosted by the Pituitary Network…
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Don’t Miss This Acromegaly Webinar Next Week
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Phase 3 Clinical Trial for Acromegaly Reaches FDA Agreement
In very recent news, the biopharmaceutical company Chiasma, Inc. announced that it has come to an agreement with the US FDA regarding the design of a phase III clinical trial…
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Phase 3 Clinical Trial for Acromegaly Reaches FDA Agreement
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Could This Egyptian Pharaoh Have Had the Oldest Case of Acromegaly?
Sa-Nakht was an ancient Egyptian pharaoh who lived circa 2700 B.C. While there are many tall tales surrounding his reign, one that is especially tall, literally, and not figuratively, is…
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Could This Egyptian Pharaoh Have Had the Oldest Case of Acromegaly?
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Radio Personality Froggy Leaps into Conversations about Acromegaly
You’re more likely to recognize his voice rather than his face. If you love segments like “Food News with Froggy” or “Phone Taps” from the Elvis Duran and the Morning…
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Radio Personality Froggy Leaps into Conversations about Acromegaly
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$2.8 Million is Going Towards This New Acromegaly Treatment
Crinetics Pharmaceuticals, Inc. is a pharmaceutical/therapeutics company that focuses on rare endocrine-related disorders and cancers. This past month, excitingly, the pharmaceutical company announced that it had been awarded a Phase IIB…
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$2.8 Million is Going Towards This New Acromegaly Treatment
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Running to the Future: Even Acromegaly Cannot Stop This Man
Runner’s high: the euphoric sensation that endurance athletes feel when they exercise for an extended period of time. For those who have never felt it, it sounds like the Fountain…
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Running to the Future: Even Acromegaly Cannot Stop This Man
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The 3rd Edition of the WAPO ‘Global Pituitary Voice’
The World Alliance of Pituitary Organizations unites the pituitary patient community and as one of our partners, they sent us their latest newsletter! In it, you can read the chairperson's report,…
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The 3rd Edition of the WAPO ‘Global Pituitary Voice’
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El chef de repostería esperanzas de aplastar la acromegalia
A los 23 años, Jessie Brenholt debe ser ocupado planeando el resto de su vida, como el matrimonio y tener una familia. En su lugar, el graduado 2012 de Le…
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El chef de repostería esperanzas de aplastar la acromegalia
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Living with Acromegaly and Symptom-Free, How Did She Do It?
Isn't it it ironic that the rarest things in the world can also be the most severe? Acromegaly, for example. When she was only 23, Jillian was diagnosed with a…
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Living with Acromegaly and Symptom-Free, How Did She Do It?
Editor’s Choice: Thanksgiving Gratitude in the Face of Rare Disease
Happy Thanksgiving Patient Worthians! We hope you are recovering from big meals and continuing to spend time with family this weekend. Editor's choice this week focuses on gratitude expressed by our…
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Editor’s Choice: Thanksgiving Gratitude in the Face of Rare Disease
Grateful Cabin Fever
Having a rare disease is exhausting on so many levels. The pain, the lack of sleep, the lack of money, the doctors’ appointments… Where is the fun and the spontaneity?…
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Grateful Cabin Fever
Unfortunately, We Missed It
The physicians who left me undiagnosed said "we" missed the brain tumor. WE?! YOU, the 10 or 12 doctors I saw, missed that I had acromegaly. The doctor who finally…
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Unfortunately, We Missed It
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Why You Need to Be Aware of Your Pituitary Gland
When the pituitary gland overproduces growth hormone (GH), its usually because a pituitary adenoma has formed. An adenoma is a benign tumor that causes the patient to continue to grow. Hands and feet…
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Why You Need to Be Aware of Your Pituitary Gland
