Tags Posts tagged with "acromegaly"

acromegaly

Read Part 1 of Amy's Acromegaly Story here. The doctors told me that they felt the surgery removing the tumor was successful, but because of...

My name is Amy, and I’m a 37 year old single mom of two beautiful girls, ages 8 and 13.  I work full time...

Midatech Pharma just received verbal confirmation from Polish regulators to conduct the first European in-human study for a treatment that could potential aid those...

In 1994, Deanna Babiuk-Black began to feel sick very frequently. Her typical care-free personality was being challenged with illness and her personal words to...

When is acromegaly like a scene from a movie? I know it's a stretch, but bear with me. I rarely go to the movies, you...

It is Patient Worthy’s pleasure to report on the first International Acromegaly conference which brought together acromegaly support groups from East and West Canada,-...

Too much of a good thing can be dangerous. For people with acromegaly, a rare disease caused by too much growth hormone (GH), an excess of...

Come to Canada to learn and talk more about acromegaly among specialists, professionals, advocates, patients and spouses! COST Acromegaly Patients & Spouses: FREE For all other attendees:...

We’ve all heard the expression, “A picture is worth a thousand words.” I once used it as an excuse to get out of drawing...

It pays to have a friend who's a research endrocrinologist—especially when you have a rare and little-known disease like acromegaly. For Oregon-based teacher, Betsy Whispell, the...

Among the many uses of social media, medical diagnosis for rare diseases, for everything from acromegaly to Zellweger spectrum syndromes, may not be the...

Growth spurts? As an overachieving parent, I couldn’t get enough of them. I was the kind of mom who wanted to remember each and...

Learn more about acromegaly at the most low maintenance seminar of all time—on your own computer! From 1:00PM-2:00PM EST on Wednesday, August 23, 2017, sign...

If you or a loved one has acromegaly or suspected acromegaly, then this is a free webinar you won't want to miss. The webinar is...

In very recent news, the biopharmaceutical company Chiasma, Inc. announced that it has come to an agreement with the US FDA regarding the design...

Sa-Nakht was an ancient Egyptian pharaoh who lived circa 2700 B.C. While there are many tall tales surrounding his reign, one that is especially...

You’re more likely to recognize his voice rather than his face. If you love segments like “Food News with Froggy” or “Phone Taps” from...

Crinetics Pharmaceuticals, Inc. is a pharmaceutical/therapeutics company that focuses on rare endocrine-related disorders and cancers. This past month, excitingly, the pharmaceutical company announced that it...

Runner’s high: the euphoric sensation that endurance athletes feel when they exercise for an extended period of time. For those who have never felt...

The World Alliance of Pituitary Organizations unites the pituitary patient community and as one of our partners, they sent us their latest newsletter! In it, you...

A los 23 años, Jessie Brenholt debe ser ocupado planeando el resto de su vida, como el matrimonio y tener una familia. En su lugar,...

Isn't it it ironic that the rarest things in the world can also be the most severe? Acromegaly, for example. When she was only 23,...

Happy Thanksgiving Patient Worthians! We hope you are recovering from big meals and continuing to spend time with family this weekend. Editor's choice this week focuses on...

Having a rare disease is exhausting on so many levels. The pain, the lack of sleep, the lack of money, the doctors’ appointments… Where...

The physicians who left me undiagnosed said "we" missed the brain tumor. WE?! YOU, the 10 or 12 doctors I saw, missed that I...