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Fewer Newborns in Australia Have Cerebral Palsy
PublicDomainPictures / Pixabay

Fewer Newborns in Australia Have Cerebral Palsy

  • Post author:Jessica Lynn
  • Post published:April 25, 2022
  • Post category:Cerebral Palsy

There are multiple factors which may play a role in the development of cerebral palsy, a neurological movement disorder. This condition can be caused by injuries to the brain at…

Continue Reading Fewer Newborns in Australia Have Cerebral Palsy
Australians Say it’s Time to Catch up on Chronic Fatigue Syndrome
Source: Pixabay

Australians Say it’s Time to Catch up on Chronic Fatigue Syndrome

  • Post author:Samuel Sachs
  • Post published:May 24, 2018
  • Post category:Chronic Fatigue Syndrome

Some people would describe Susan Hutchinson as a thrill seeker. She's type of person to climb volcanoes. She joined the army reserves. Perhaps that’s what makes a diagnosis like chronic…

Continue Reading Australians Say it’s Time to Catch up on Chronic Fatigue Syndrome
Surprising Hospital Risks For Young Cystic Fibrosis Patient
Source: Pixabay

Surprising Hospital Risks For Young Cystic Fibrosis Patient

  • Post author:Samuel Sachs
  • Post published:March 20, 2018
  • Post category:Cystic Fibrosis

For most people, sharing a bathroom with a stranger represents an unpleasant thought. It’s just sort of uncomfortable. For 14-year-old Holly Aspinall, however, it's a real danger. Holly suffers from…

Continue Reading Surprising Hospital Risks For Young Cystic Fibrosis Patient
At Barely a Year Old, Lucia is About to Have Surgery on Her Skull
source: pixabay.com

At Barely a Year Old, Lucia is About to Have Surgery on Her Skull

  • Post author:James Moore
  • Post published:January 26, 2018
  • Post category:Craniosynostosis

According to a story from the Murray Valley Standard, Lucia's parents Julie and Peter knew within weeks after her birth that something was wrong with their newborn baby's head. Although…

Continue Reading At Barely a Year Old, Lucia is About to Have Surgery on Her Skull
Don’t Just Complain About Amyloidosis, Do Something About It
Source: Pixabay

Don’t Just Complain About Amyloidosis, Do Something About It

  • Post author:James Ernest Cassady
  • Post published:September 14, 2016
  • Post category:Amyloidosis/Rare Disease/Timely

On Saturday, 29 October, 2016, the Adam Gardiner Fund will host Come Racing at Rosehill Gardens in Randwick, Australia. The event, like everything the AGF does, is intended to raise funds to…

Continue Reading Don’t Just Complain About Amyloidosis, Do Something About It
Perdiendo el tren acerca del AEH

Perdiendo el tren acerca del AEH

  • Post author:Patient Worthy Contributor
  • Post published:May 31, 2016
  • Post category:HAE/Rare Disease

Las víctimas de la enfermedad rara y potencialmente mortal angioedema hereditario (AEH) están levantando banderas rojas debido Australia se está quedando atrás en el diagnóstico y tratamiento de la enfermedad.…

Continue Reading Perdiendo el tren acerca del AEH
What Would You Do? Brave Boy’s Life Is On The Line
Brave boy battles TYR1

What Would You Do? Brave Boy’s Life Is On The Line

  • Post author:EmpatheticBadass
  • Post published:November 16, 2015
  • Post category:Rare Disease/Tyrosinemia

When lives hang in the balance, should the needs of a few trump the bottom line? That question was all too real for one Australian mother, Shanna Druisi. As reported in…

Continue Reading What Would You Do? Brave Boy’s Life Is On The Line

How Long Will Oz Miss the Boat on HAE?

  • Post author:Patient Worthy Contributor
  • Post published:June 15, 2015
  • Post category:HAE/Rare Disease

Sufferers of the rare and potentially life-threatening disease Hereditary angioedema (HAE) are raising red flags because Australia is lagging behind on diagnosing and treating the disease. HAE allows the body's…

Continue Reading How Long Will Oz Miss the Boat on HAE?
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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