The Assistance Fund Offers New Financial Assistance Program for People with Idiopathic Hypersomnia (IH)
HeatherPaque / Pixabay

The Assistance Fund Offers New Financial Assistance Program for People with Idiopathic Hypersomnia (IH)

As many people within the rare disease community know, a rare disease diagnosis can come with a significant financial burden. Additionally, the costs, treatments, equipment, and other needs are not…

Continue Reading The Assistance Fund Offers New Financial Assistance Program for People with Idiopathic Hypersomnia (IH)
Disability Pride Is For All
source: shutterstock.com

Disability Pride Is For All

The Peter Pan novel which J.M. Barrie wrote in 1911, based on his 1904 play, includes a curious concept about the hideout trees Peter uses for his lost boys' housing.…

Continue Reading Disability Pride Is For All
They Don’t Know What They Don’t Know: Learning to Manage Judgement and Criticism from Others When Living with a Chronic and Debilitating Condition
source: shutterstock.com

They Don’t Know What They Don’t Know: Learning to Manage Judgement and Criticism from Others When Living with a Chronic and Debilitating Condition

Written by Lisa Matthews I know I am not alone in my suffering…Recently, I read an article published in 2018 by The National Library of Medicine where it was estimated that,…

Continue Reading They Don’t Know What They Don’t Know: Learning to Manage Judgement and Criticism from Others When Living with a Chronic and Debilitating Condition
Rare Community Profiles: The Cost of Preventive Care in Chronic Illness and Rare Disease—and Why We Need to Talk About It
source: shutterstock.com

Rare Community Profiles: The Cost of Preventive Care in Chronic Illness and Rare Disease—and Why We Need to Talk About It

Rare Community Profiles     Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…

Continue Reading Rare Community Profiles: The Cost of Preventive Care in Chronic Illness and Rare Disease—and Why We Need to Talk About It