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chronic pain

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Don’t Beat Yourself Up. Chronic Pain Does that Enough.
Source: Pixabay

Don’t Beat Yourself Up. Chronic Pain Does that Enough.

  • Post author:Tom Seaman
  • Post published:February 27, 2018
  • Post category:Dystonia/Rare Disease

I have lived with chronic pain from a neurological movement disorder called dystonia for nearly 20 years. It reminds me of the bully who picks on kids in the schoolyard…

Continue Reading Don’t Beat Yourself Up. Chronic Pain Does that Enough.
Little Known Way to Rid Yourself of Lyme Disease Pain
[Source: pixabay.com]

Little Known Way to Rid Yourself of Lyme Disease Pain

  • Post author:Sabina Kennedy
  • Post published:August 25, 2017
  • Post category:Lyme Disease

Stepping on a Lego—that piercing pain is familiar to just about everyone, and it hurts an unreasonable amount. You step on other things all the time, but Legos seem to…

Continue Reading Little Known Way to Rid Yourself of Lyme Disease Pain
Could Snail Venom Be Your Answer to Pain Management?
Source: pixabay

Could Snail Venom Be Your Answer to Pain Management?

  • Post author:Patient Worthy Contributor
  • Post published:February 21, 2017
  • Post category:Behçet's/Rare Disease

Those of us with rare diseases like behcet's and fibromyalgia, that cause great pain, can often get frustrated and irritable because we try everything, do everything right, and yet we are still…

Continue Reading Could Snail Venom Be Your Answer to Pain Management?
CRPS: La enfermedad más dolorosa que usted nunca ha conocido
CRPS is a the most painful disease you've never heard of.

CRPS: La enfermedad más dolorosa que usted nunca ha conocido

  • Post author:Jean Martell
  • Post published:February 14, 2017
  • Post category:Complex Regional Pain Syndrome/Español/Rare Disease

¿Qué pasa si vives con dolor crónico todos los días - y no sólo pequeños dolores, pero dolor de nivel 8 en una escala de 1 a 10? Kirah DeCarlo…

Continue Reading CRPS: La enfermedad más dolorosa que usted nunca ha conocido
Trigeminal Neuralgia: How to Avoid 911 by Learning the 411
Source: pixabay.com

Trigeminal Neuralgia: How to Avoid 911 by Learning the 411

  • Post author:Alisha Stone
  • Post published:December 14, 2016
  • Post category:Rare Disease/Trigeminal Neuralgia (Tic Douloureux)

I found an interesting article about Trigeminal Neuralgia (TNA) which was a real eye-opener for me, and I’d like to share the highlights with you. If you or your loved…

Continue Reading Trigeminal Neuralgia: How to Avoid 911 by Learning the 411
Trigeminal Neuralgia: This is Your Worst Nightmare
Source: www.pixabay.com

Trigeminal Neuralgia: This is Your Worst Nightmare

  • Post author:Alisha Stone
  • Post published:December 9, 2016
  • Post category:Rare Disease/Trigeminal Neuralgia (Tic Douloureux)

So, it’s Friday afternoon, and you’re at work in a crammed meeting room. You’re looking forward to dinner with some friends. Only two more hours to go. All you’ve gotta…

Continue Reading Trigeminal Neuralgia: This is Your Worst Nightmare
How America’s Opioid Obsession Is Hurting Vets With AS
Veterans also need proper medical attention.

How America’s Opioid Obsession Is Hurting Vets With AS

  • Post author:James Ernest Cassady
  • Post published:January 12, 2016
  • Post category:Ankylosing Spondylitis/Rare Disease

Michael Needham is a Vietnam veteran who served in the Navy before being discharged as a result of his ankylosing spondylitis (AS). In order to live with the pain of his…

Continue Reading How America’s Opioid Obsession Is Hurting Vets With AS
CRPS: The Most Painful Disease You’ve Never Heard Of
CRPS is a the most painful disease you've never heard of.

CRPS: The Most Painful Disease You’ve Never Heard Of

  • Post author:James Ernest Cassady
  • Post published:November 18, 2015
  • Post category:Complex Regional Pain Syndrome/Rare Disease

What if you lived with chronic pain every day of your life--and not just little "ouchie" pains, but real 8 on a scale of 1 to 10 kind of pain? Kirah DeCarlo…

Continue Reading CRPS: The Most Painful Disease You’ve Never Heard Of
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You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here
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