Layne Rodgers is a longtime Astros fan. When he went to the World Series to see his favorite team, he had no way of predicting what would happen next. Just…
Jessica Brown is gearing up to turn 11 years old on December 20th, and her mother, Jemma, is urging people to show her some birthday love. Jessica suffers from neurofibromatosis,…
Tourette syndrome (TS) is a rare, and widely misunderstood neurological condition. It causes involuntary vocalizations or movements, which are called tics. This can appear in many forms: repetitive throat clearing…
Alex Pasichnyk is a 12-year-old girl from Canada, who enjoys playing piano and swimming. Last June, her life was suddenly interrupted by a rare disease. Alex has to leave her…
What do restored clawfoot tubs, spelunking meetups, and first-grade school pictures have in common? They can all be found on social media sites on the internet. But other than connecting…
For people with postural orthostatic tachycardia syndrome (POTS), everyday activities can sap a lot of strength. POTS is a form of dysautonomia that is characterized by a shortage of blood…
People find love in endless different ways. Some people meet their romantic partner through dating apps and singles groups, others meet at work or social gatherings. One place you don't…
Jessica Gilbert uses her rare neurological disorder as fuel for her creativity. The Converse College student suffers from misophonia, which translates into "the hatred of sound." People who suffer from…
28-year-old Emily Rogers was training for a half marathon in Hamilton a few years ago, when she started having trouble breathing. She never could have predicted what would follow. The…
“What would I give if I could live out of these waters? What would I pay to spend a day warm on the sand? Bet'cha on land they understand Bet…
Hello, I am Nicole Campanella, 65 years young and I share my body with lupus and now, osteoporosis. My entire life, there were symptoms of lupus or some sort of…
Iasmin Omar Ata's stunning graphic novel, Mis(h)adra, dives into the vibrant, hypnotic world of epilepsy. Although it only came out about a month ago, it has received critical acclaim from…
This past August, NHL veteran Brian Boyle was tired, but as a father of two children, being tired didn’t really surprise him. It was a diagnosis of chronic myelogenous leukemia…
The story starts when Amy Miller was 18 years old, gearing up to start her first year in university. She wasn't pregnant, but she had missed her periods for the…
Morning, noon, and night Nikki Peterson experiences varying levels of pain, according to an online article in The Root. The pain affects her mood and how she approaches every day.…
Jane Hamilton, a student at Century High School, Minnesota, has Tourette Syndrome, which is a disorder of the nervous system that can cause involuntary vocalizations and movements, which are commonly known…
“It’s all in your head.” I dare say these are words that many people living with a rare disease, including dystonia, have heard. It’s absolutely unfair, aggravating, heartbreaking, maddening. I…
Everyone with dietary restrictions knows the struggle of going to the grocery store, scanning the nutrition, and sighing when it doesn't quite meet the requirements you need. That exasperation, looking…
You've heard about Hurricane Irma and Maria that hit Puerto Rico, destroying schools, hospitals, and leaving the island without power. You've seen the devastating photos. Millions of people living there…
If you're a fan of indie documentaries and contemplating the purpose of life, you'll probably like Gabe. Long before the filming began, Gabe Weil's story started in St Louis. He…
Four years ago, Meli Dez and Jules Morse came back from their "mom-cation" to Montreal changed. Both women were mothers of young children, and suddenly they were exposed to a…
Disease and community are both powerful things. When AAG, a rare disease affected Erika's life, her community fought back with her. Find out how below, and follow the full story…
All her life, Caitlin Shaw, a 15-year-old girl in England, has faced a number of serious health problems. She was born with numerous heart complications, as well as Kyphoscoliosis and…
Hannah Chertock's art is a stunning testament to patience, and a thorough investigation of what it means to live in a human body. Chertock, the artist behind Bodies Adapt, studied…
They say you have to suffer for your art-- this actor and director took that literally. Shooting a major feature film is exhausting work. Salman Khan, a huge name in…
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