diversity – Patient Worthy

Rare Community Profiles: #RAREis: Increasing Medical Access and Equity for the Hispanic Community through The Akari Foundation’s Initiatives

Post author:Jessica Lynn
Post published:June 6, 2024
Post category:Duchenne Muscular Dystrophy

Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

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RETINA WORLD CONGRESS: Diabetic Macular Edema Clinical Trials Lack Patient Diversity

Post author:Jessica Lynn
Post published:May 23, 2024
Post category:Diabetic macular edema

When it comes to medical research, diversity, equity, and inclusion need to be larger parts of the conversation. As it stands now, medical research can be fiercely hierarchical, expensive, and homogenous in terms of…

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Impact of Diabetes on Multiple Myeloma Varies by Racial Background

Post author:James Moore
Post published:November 2, 2023
Post category:Multiple Myeloma

According to a report from Healio, a recent study evaluated the impact of diabetes on people living with multiple myeloma, a rare form of hematological cancer. The study indicated that…

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Understanding RSV: Why Combatting Ethnic and Age-Related Health Disparities Could Improve Outcomes

Post author:Jessica Lynn
Post published:October 19, 2023
Post category:RSV

Editor's Note: Chronic conditions and rare diseases don't discriminate. Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have…

source: shutterstock.com

That’s My Word: Spreading Multiple Myeloma Awareness in the Black Community

Post author:James Moore
Post published:May 16, 2023
Post category:Multiple Myeloma

Marsha Calloway-Campbell lives a full life as a lawyer, business owner, wife to her husband Armaray, mother to her three adult daughters, and “Naun” to her toddler grandson. But her…

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A New National Analysis Indicates that Higher Levels of Black Primary Care Physicians Means Longer Life Expectancy for Black Patients

Post author:Rose Duesterwald
Post published:April 24, 2023
Post category:Rare Disease

Over the years, there has been minimal improvement in the life expectancy differences between white and black people living in the United States. Yet, according to an article featured…

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Research!America Discussion with Dr. Mary Pittman: Better Data for More Equitable Research

Post author:James Moore
Post published:April 20, 2023
Post category:Rare Disease

On April 12, 2023, Research!America, a Patient Worthy partner organization, hosted a webinar program titled Better Data for More Equitable Public Health Research. This talk featured Dr. Mary Pittman, President…

Photo by National Cancer Institute on Unsplash

Advocate with Multiple Myeloma Works to Raise Awareness of Racial Disparities in Cancer Care

Post author:Jessica Lynn
Post published:February 13, 2023
Post category:Multiple Myeloma

For as long as she can remember, Tiffany Williams wanted to make a difference, especially in the healthcare field. She earned her doctorate degree and began working as a…

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Bridging the Diversity Gap in Healthcare

Post author:Rose Duesterwald
Post published:December 21, 2022
Post category:Rare Disease

Editor's Note: Chronic conditions and rare diseases don't discriminate, Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have…

source: pixabay.com

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics (Pt. 2)

Post author:Jessica Lynn
Post published:December 16, 2022
Post category:Rare Disease

Before you read, don't forget to check out Part 1 of our interview! In Part 1, we discuss Ronya's story, genetic counseling, and why she chose to launch DNA in Color.…

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics (Pt. 1)

Post author:Jessica Lynn
Post published:December 15, 2022
Post category:Diversity DNA

Editor's Note: Chronic conditions and rare diseases don't discriminate, Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have…

source: pixabay.com

All of Us Research Program Aims to Diversify Medical Research

Post author:Jessica Lynn
Post published:October 7, 2022
Post category:Rare Disease

Over the years, there have been growing concerns about medical research failing to cover or explore diverse groups of people. But in a world where healthcare is not just one-size-fits-all, how…

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We Need Equity and Diversity Within Rare Disease Research

Post author:Kendall Mason
Post published:July 8, 2021
Post category:Rare Disease

Rare diseases face many obstacles when it comes to research and drug development. Small patient populations, a lack of awareness, and limited funding are just a few examples. When it…

source: pixabay.com

A New Rare Disease Diversity Coalition Was Formed to Fight Healthcare Inequality

Post author:Jessica Lynn
Post published:June 12, 2020
Post category:Rare Disease Timely

An estimated 25-30 million Americans are part of the rare disease community. If you're one of them, you share a common (yet uncommon) experience: public scrutiny, difficulties in diagnoses, treatment…

Rare Community Profiles: #RAREis: Increasing Medical Access and Equity for the Hispanic Community through The Akari Foundation’s Initiatives

RETINA WORLD CONGRESS: Diabetic Macular Edema Clinical Trials Lack Patient Diversity

Impact of Diabetes on Multiple Myeloma Varies by Racial Background

Understanding RSV: Why Combatting Ethnic and Age-Related Health Disparities Could Improve Outcomes

That’s My Word: Spreading Multiple Myeloma Awareness in the Black Community

A New National Analysis Indicates that Higher Levels of Black Primary Care Physicians Means Longer Life Expectancy for Black Patients

Advocate with Multiple Myeloma Works to Raise Awareness of Racial Disparities in Cancer Care

Bridging the Diversity Gap in Healthcare

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics (Pt. 2)

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics (Pt. 1)

All of Us Research Program Aims to Diversify Medical Research

We Need Equity and Diversity Within Rare Disease Research

A New Rare Disease Diversity Coalition Was Formed to Fight Healthcare Inequality

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