A Plasma Shortage is Affecting Common Variable Immune Deficiency Patient’s Access to Treatment

Heather White Heather White is a 41-year-old woman who was diagnosed with common variable immune deficiency (CVID) back in 2004 after fighting frequent bouts of pneumonia. Doctors believe that she…

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Helpful Resources for CIDP Patients
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Helpful Resources for CIDP Patients

Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare disease that affects the nervous system. It causes peripheral nerves and nerve roots (the sites where nerves are attached to the central…

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FDA Approves Investigational New Drug Application For an Experimental Treatment for Guillain-Barre Syndrome
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FDA Approves Investigational New Drug Application For an Experimental Treatment for Guillain-Barre Syndrome

According to a story from BioSpace, the biotechnology company Cellenkos, Inc., recently announced that the US Food and Drug Administration (FDA) has given the company the go ahead to begin…

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Vacation Gone Wrong: Teen Opens Up About Her Sudden Paralysis Due to Rare Disease

People Magazine published an article about 20-year-old Kara Dunn who suddenly became paralyzed during a vacation to Spain, due to a rare disease she didn't know she had. Guillain-Barré Syndrome…

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New Evidence Uncovered Connecting Risk Factors Between Zika Virus and Guillain-Barré syndrome
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New Evidence Uncovered Connecting Risk Factors Between Zika Virus and Guillain-Barré syndrome

New findings are coming from a recent study led by researchers at the Journal of the American Medical Association (JAMA) that could have long-term implications for Zika Virus research. Evidence showed that…

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Is Zika a Risk Factor For Guillain-Barre Syndrome? New Research Sheds Light
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Is Zika a Risk Factor For Guillain-Barre Syndrome? New Research Sheds Light

You may have heard the buzz during the Zika outbreak in 2016. Many professionals suspected a relationship between the Zika virus and Guillain Barre Syndrome (GBS). Guillain Barre Syndrome is…

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After Being Paralyzed For 10 Weeks, a Guillain-Barre Syndrome Patient Will Walk Again
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After Being Paralyzed For 10 Weeks, a Guillain-Barre Syndrome Patient Will Walk Again

Dancers have amazing muscle control. Through hard work and practice, they learn to make the tiniest movements precisely. So imagine the terror former dancer Emily Thompson, then only 20, felt…

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Is There a Possible Link Between the Zika Virus and Guillain-Barre Syndrome?
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Is There a Possible Link Between the Zika Virus and Guillain-Barre Syndrome?

Guillain-Barre Syndrome is a rare disorder that attacks the body’s nervous system. For anyone who has gotten Guillain-Barre Syndrome, the symptoms begin swiftly. It causes paralysis and symptoms typically begin…

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Guillain-Barre Syndrome Can Go From Bad to Worse… and Very Quickly!
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Guillain-Barre Syndrome Can Go From Bad to Worse… and Very Quickly!

Guillain-Barre syndrome, or GBS, occurs when the body's immune system attacks the nerves. People will usually notice tingling and weakness in their arms and legs. As annoying as that can feel,…

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Guillain-Barre Syndrome Survivors Connect Through Online Community
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Guillain-Barre Syndrome Survivors Connect Through Online Community

The National Institute of Neurological Disorders and Stroke states Guillain-Barre syndrome (GBS) affects 1 in 100,000 people. Let that sink in. 1 in 100,000 equates to 0.001%. Compare that to the…

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