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Misdiagnosis

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They Diagnosed Tonsillitis, But it Was Actually Acute Myeloid Leukemia

They Diagnosed Tonsillitis, But it Was Actually Acute Myeloid Leukemia

  • Post author:Rose Duesterwald
  • Post published:June 15, 2022
  • Post category:Acute Myeloid Leukemia

Lately, the first thing that enters a person’s mind if they encounter an unusual pain is that they may have cancer. Yet that was the last thing Georgina Masson, an…

Continue Reading They Diagnosed Tonsillitis, But it Was Actually Acute Myeloid Leukemia
Fibromyalgia Diagnoses May be Hiding Other Rare Conditions

Fibromyalgia Diagnoses May be Hiding Other Rare Conditions

  • Post author:Trudy Horsting
  • Post published:April 27, 2022
  • Post category:Fibromyalgia

Fibromyalgia is a condition that is characterized by fatigue, memory issues, and musculoskeletal pain. It is also associated with depression, anxiety, and irritable bowel syndrome (IBS). Symptoms of fibromyalgia include…

Continue Reading Fibromyalgia Diagnoses May be Hiding Other Rare Conditions
Chiari Malformation Symptoms Dismissed as Menopause
ckstockphoto / Pixabay

Chiari Malformation Symptoms Dismissed as Menopause

  • Post author:Jessica Lynn
  • Post published:April 1, 2022
  • Post category:Chiari Malformation

In the years leading up to menopause (perimenopause), migraines and headaches become increasingly common. Pair this with mental fogginess and memory issues, changes in mood, altered eyesight, sleep difficulties, and…

Continue Reading Chiari Malformation Symptoms Dismissed as Menopause
Ovarian Cancer Misdiagnosed as Perimenopause: Jane’s Story
source: pixabay.com

Ovarian Cancer Misdiagnosed as Perimenopause: Jane’s Story

  • Post author:Jessica Lynn
  • Post published:February 1, 2022
  • Post category:Ovarian Cancer

Just about two years ago, Jane Warrimer began experiencing abnormal menstruation. Her period was no longer regular; her bleeding lasted for weeks at a time. After pursuing an IUD, Jane…

Continue Reading Ovarian Cancer Misdiagnosed as Perimenopause: Jane’s Story
A Mother’s Autoimmune Encephalitis Misdiagnosed as “Breakdown” 
source: pixabay.com

A Mother’s Autoimmune Encephalitis Misdiagnosed as “Breakdown” 

  • Post author:Jessica Lynn
  • Post published:December 3, 2021
  • Post category:Autoimmune encephalitis

In April 2020, Elly Hawkins, a mother of three who currently lives in Queensland, Australia, began experiencing some odd symptoms. At first, the 35-year-old woke up with extreme vertigo. It…

Continue Reading A Mother’s Autoimmune Encephalitis Misdiagnosed as “Breakdown” 
Woman Diagnosed with Encephalitis After Weeks of Confusion
source: pixabay.com

Woman Diagnosed with Encephalitis After Weeks of Confusion

  • Post author:James Moore
  • Post published:March 1, 2021
  • Post category:Encephalitis lethargica

According to a story from azfamily.com, Reyna Felix, age 28, was at work as a 911 dispatcher when her coworkers said that she started behaving strangely. Around midnight, she fell…

Continue Reading Woman Diagnosed with Encephalitis After Weeks of Confusion
Channel Your Inner Doctor and Help This Woman Finally Get a Diagnosis
valelopardo / Pixabay

Channel Your Inner Doctor and Help This Woman Finally Get a Diagnosis

  • Post author:Lady Kehveen Abernathy
  • Post published:November 15, 2016
  • Post category:Acromegaly/Rare Disease

If you're reading this, I want you to forget who you are and take on the identity of a doctor, specifically an endocrinologist... starting NOW! GO! The Case A female…

Continue Reading Channel Your Inner Doctor and Help This Woman Finally Get a Diagnosis
How Her Addison’s Diagnosis Saved Her Life

How Her Addison’s Diagnosis Saved Her Life

  • Post author:Patient Worthy Contributor
  • Post published:October 11, 2016
  • Post category:Addison's Disease/Rare Disease

I have been told that one of my first words spoken was "Why?" Ever inquisitive, I have always had a fascination with the how and why. As a child I…

Continue Reading How Her Addison’s Diagnosis Saved Her Life
aprende a ser valiente como esta milenaria inspiradora con AEH

aprende a ser valiente como esta milenaria inspiradora con AEH

  • Post author:Patient Worthy Contributor
  • Post published:June 28, 2016
  • Post category:HAE/Rare Disease

Amanda luchó durante años para comprender el dolor y la hinchazón que se mantuvo experimentar. Sus médicos no podía entender era incorrecto y que nunca supo por qué la garganta…

Continue Reading aprende a ser valiente como esta milenaria inspiradora con AEH
3 Painful Misdiagnoses You Do Not Want To Get Stuck With
Pixabay

3 Painful Misdiagnoses You Do Not Want To Get Stuck With

  • Post author:Kiki Jones
  • Post published:April 27, 2016
  • Post category:HAE/Rare Disease

A guy walks into an emergency room. He tells the doctor, “I’ve got abdominal pain. Can you help me with my (IBS)?” The doctor shakes her head and says, “No, but…

Continue Reading 3 Painful Misdiagnoses You Do Not Want To Get Stuck With
¿Has oído? Lo que las cebras y pacientes con ICV tienen en común…
Source: National Geographic

¿Has oído? Lo que las cebras y pacientes con ICV tienen en común…

  • Post author:Patient Worthy Contributor
  • Post published:April 20, 2016
  • Post category:CVID/Rare Disease

¿Cómo obtuvieron sus rayas los pacientes con ICV? Las cebras son vistos como único. Se encuentran sólo en determinados lugares con ambientes específicos; hacen alarde de rayas que son icónicos…

Continue Reading ¿Has oído? Lo que las cebras y pacientes con ICV tienen en común…

Learn To Be Brave From This Inspiring HAE Millennial

  • Post author:Rebekah
  • Post published:June 18, 2015
  • Post category:HAE/Rare Disease

Amanda struggled for years to understand the pain and swelling that she kept experiencing. Her doctors couldn't figure out was wrong and she never knew why her throat would sometimes…

Continue Reading Learn To Be Brave From This Inspiring HAE Millennial
Have You Herd? What Zebras and CVID patients have in common…
Source: National Geographic

Have You Herd? What Zebras and CVID patients have in common…

  • Post author:Rebekah
  • Post published:June 15, 2015
  • Post category:CVID/Rare Disease

How did CVID patients earn their stripes? Zebras are viewed as unique. They are only found in limited locations with specific environments; they flaunt stripes that are iconic to their…

Continue Reading Have You Herd? What Zebras and CVID patients have in common…
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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