“Being Okay” – Kylie’s NF1 Journey
When we are faced with an obstacle, big or small, we supposedly pick one of two options: to fight it or to run away. Nowadays, they say there are more…
Continue Reading
“Being Okay” – Kylie’s NF1 Journey
Kaye Lynn VanAntwerp’s Fiery Battle Against Metastatic Colorectal Cancer
My story is like so many other's stories: healthy, semi-young, active, usually chose the salad over the fries, parked farther away in the parking lot to get some extra steps…
Continue Reading
Kaye Lynn VanAntwerp’s Fiery Battle Against Metastatic Colorectal Cancer
The Weight of a Decision
Editor's Note: We're proud to be the first to share this story by Blair Young Whitworth, a Parent Champion of the Courageous Parents Network. There were so many anxious years…
Continue Reading
The Weight of a Decision
Rady’s Lupus Journey: Carried by Faith, Fueled by Hope
I came to the United States from the Philippines in June 2016, full of excitement and dreams. I was ready to build a new life, work hard, and create something…
Continue Reading
Rady’s Lupus Journey: Carried by Faith, Fueled by Hope
Sherry Crutchfield’s Journey with Glanzmann Thrombasthenia
Editor's Note: Patient Worthy is proud to share this story from our friends at the Glanzmann's Research Foundation (GRF). To see the article in its original format, please click here.…
Continue Reading
Sherry Crutchfield’s Journey with Glanzmann Thrombasthenia
Vincenzo’s Journey with Glanzmann Thrombasthenia
Editor's Note: Patient Worthy is proud to bring you this story from our friends at the Glanzmann Research Foundation. To see the article in its original format, please click here.…
Continue Reading
Vincenzo’s Journey with Glanzmann Thrombasthenia
Jyll’s Journey with Glanzmann Thrombasthenia
Editor's Note: Patient Worthy is honored to share this story from our friends at the GRF (Glanzman's Research Foundation). To see the article in its original form, please click here.…
Continue Reading
Jyll’s Journey with Glanzmann Thrombasthenia
My Diagnosis Didn’t Silence Me, It Lit a Fire
Editor's Note: Patient Worthy is proud to bring you this story-share, originally written by Gwen Pike, founder of the podcast Empowerment in Illness. When I was in my twenties, life was…
Continue Reading
My Diagnosis Didn’t Silence Me, It Lit a Fire
Living with Brugada Syndrome
Editor's Note: Patient Worthy is honored to bring you this patient story-share from Michael Grivas. For more information and resources, please visit the SADS Foundation. My name is Michael Grivas,…
Continue Reading
Living with Brugada Syndrome
The Fight for Life: Sean Mulroney’s Battle Against the Odds
In the shadows of his weight struggles, Sean Mulroney’s journey began at the staggering weight of 687 pounds in 2016. It was a weight that felt like a shackle, chaining…
Continue Reading
The Fight for Life: Sean Mulroney’s Battle Against the Odds
Emily’s Story with Glanzmann Thrombasthenia
Editor's Note: Patient Worthy is proud to share this article from our friends at Glanzmann's Research Foundation. To see the article in its original form, please click here. Hello! I…
Continue Reading
Emily’s Story with Glanzmann Thrombasthenia
Christena’s Caregiver Journey for Two Boys with DMD
I’ve spoken regularly with family members and friends about my sons and their diagnosis and about our real-world struggles. I’ve advocated for them at our local pediatrician’s office, educated our…
Continue Reading
Christena’s Caregiver Journey for Two Boys with DMD
Jhonnatan’s Fight Against Gastric Cancer
Jhonnatan's recent journey with gastric cancer at age 36 ignited a passion within him to share his story and advocate for others. What began as a personal effort to keep…
Continue Reading
Jhonnatan’s Fight Against Gastric Cancer
Brian’s Journey with Mantle Cell Lymphoma
In 2019, I left my job to start working for myself. Things were going well until March 2020, when the pandemic hit. In January of 2021, I said to myself,…
Continue Reading
Brian’s Journey with Mantle Cell Lymphoma
Terri and Bryan’s Fight Against Colon Cancer
I am a caregiver to my wonderful husband, Bryan. Our journey began at a rapid pace after a trip to the ER and a CT scan revealed he had stage…
Continue Reading
Terri and Bryan’s Fight Against Colon Cancer
Controlling The Response After Cancer
Editor's Note: Patient Worthy is honored to share this story from our friends at Elephants & Tea. To see the original article, please click here. One day, many years ago,…
Continue Reading
Controlling The Response After Cancer
Leanna’s Story with NF2-Related Schwannomatosis
In the spring of 2013, as a Creative Writing Major, for my senior thesis I got to write any type of creative piece of my choosing. I chose to write…
Continue Reading
Leanna’s Story with NF2-Related Schwannomatosis
Cailyn’s Stomach Cancer Journey
Editor's Note: Patient Worthy is proud to share this story from our friends at No Stomach for Cancer. To see the article in its original form, please click here. In…
Continue Reading
Cailyn’s Stomach Cancer Journey
SilvaStrong: Unveiling the Unexpected
Life has a way of catching us off guard when we least expect it. For me, it all started with severe stomach pains that led to an unexpected hospital visit.…
Continue Reading
SilvaStrong: Unveiling the Unexpected
Cathy the Lupus and ITP Warrior
Editor's Note: This article was shared with Patient Worthy by our friends at PDSA.org. To see the article in its original format, please click here. I had heard of lupus…
Continue Reading
Cathy the Lupus and ITP Warrior
Cancer: It Sucks at Any Age
Acknowledgement: Patient Worthy is proud to share this article from our friends at Elephants & Tea. To see the article in its original form, please click here. I wish someone…
Continue Reading
Cancer: It Sucks at Any Age
The Gift of Anticipatory Guidance: What Every Family Deserves
Editor's Note: Patient Worthy is proud to share this caregiver story from our friends at Courageous Parents. — A parent’s perspective by Maria Hopfgarten, Courageous Parent Network Parent Champion. When…
Continue Reading
The Gift of Anticipatory Guidance: What Every Family Deserves
Fighting for Dom: A Mother’s Journey Through Rare Disease
When you become a parent, your life changes in an instant. You’re no longer just living for yourself—you’re living for your child. A fierce and unwavering instinct takes over, a…
Continue Reading
Fighting for Dom: A Mother’s Journey Through Rare Disease
From Ballet Studios to Research Clinics: Page’s Journey with Narcolepsy
I was diagnosed with Type-1 narcolepsy when I was 20 years old. At the time, I was living in Germany, dancing as a professional ballet dancer in an opera house.…
Continue Reading
From Ballet Studios to Research Clinics: Page’s Journey with Narcolepsy
Urban’s Life with SATB2-Associated Syndrome
Acknowledgement: Patient Worthy is honored to share this story by Erika Stariha, Co-Founder and President of SATB2 Europe. This is Urban, my teenage firstborn. He is joyful. Curious. Full of…
Continue Reading
Urban’s Life with SATB2-Associated Syndrome
- Go to the previous page
- 1
- 2
- 3
- 4
- 5
- 6
- 7
- 8
- …
- 20
- Go to the next page
