Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
MASH Rec CARD (13)
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Poll/Quizzes

  1. Home>
  2. Poll/Quizzes
Te preguntamos, $100 mil en efectivo o cura para la espondilitis anquilosante?

Te preguntamos, $100 mil en efectivo o cura para la espondilitis anquilosante?

  • Post author:Patient Worthy Contributor
  • Post published:December 14, 2016
  • Post category:Ankylosing Spondylitis/Rare Disease

Para alguien que vive con una enfermedad crónica progresiva, la vida no es ninguna "caja de bombones." No importa cómo las personas positivas u optimistas son, vivir con el dolor…

Continue Reading Te preguntamos, $100 mil en efectivo o cura para la espondilitis anquilosante?
Quiz Yourself on CAPS!

Quiz Yourself on CAPS!

  • Post author:James Stone
  • Post published:January 7, 2016
  • Post category:CAPS/Rare Disease

[mlw_quizmaster quiz=1] Share this quiz with people you know who might know a thing or two about CAPS.

Continue Reading Quiz Yourself on CAPS!
New Year, New You! What’s Your 2016 Resolution?

New Year, New You! What’s Your 2016 Resolution?

  • Post author:Patient Worthy Contributor
  • Post published:December 28, 2015
  • Post category:Dysautonomia/Lyme Disease/POTS/Rare Disease

Ah the New Year. Before I was diagnosed with a chronic illness, I used to make similar, casual New Year's resolutions like "drink less alcohol" or "spend less money eating…

Continue Reading New Year, New You! What’s Your 2016 Resolution?
Editor’s Choice Weekend Roundup: It’s Thanksgiving Week!
WeekendRoundUp 11.27.2015

Editor’s Choice Weekend Roundup: It’s Thanksgiving Week!

  • Post author:Patient Worthy Contributor
  • Post published:November 27, 2015
  • Post category:Dysautonomia/POTS/Rare Disease

Happy Day-After-Thanksgiving PatientWorthians! Around this time of year, we like to emphasize the amazing gratitude in the chronic disease world. Living with a chronic illness is often a serious bummer, to…

Continue Reading Editor’s Choice Weekend Roundup: It’s Thanksgiving Week!
The Thanksgiving #whatareyouthankfulfor Quiz

The Thanksgiving #whatareyouthankfulfor Quiz

  • Post author:Rebekah
  • Post published:November 24, 2015
  • Post category:Uncategorized

Don't forget to share this quiz with your friends and family to see what are they thankful for this Holiday Season!

Continue Reading The Thanksgiving #whatareyouthankfulfor Quiz
What Are You Thankful For?
What are you thankful for this Thanksgiving?

What Are You Thankful For?

  • Post author:Patient Worthy Contributor
  • Post published:November 23, 2015
  • Post category:Myasthenia Gravis/Rare Disease

Tis the season when gratitude is in the air (can you smell it?). Wait, that may be the pumpkin pie. Anyway, Thanksgiving is a time of reflection. A time where…

Continue Reading What Are You Thankful For?
We Ask You, $100k in Cash or Ankylosing Spondylitis Cure?

We Ask You, $100k in Cash or Ankylosing Spondylitis Cure?

  • Post author:Alisha Stone
  • Post published:November 5, 2015
  • Post category:Ankylosing Spondylitis/Rare Disease

For anyone living with a progressive chronic illness, life ain’t no “box of chocolates.” No matter how positive or optimistic people are, living with pain and fatigue--day in and day…

Continue Reading We Ask You, $100k in Cash or Ankylosing Spondylitis Cure?
Which Hilarious Character is Your Rare Disease

Which Hilarious Character is Your Rare Disease

  • Post author:Kiki Jones
  • Post published:October 23, 2015
  • Post category:Ankylosing Spondylitis/Behçet's/CAPS/CVID/Dystonia/Familial Hypercholesterolemia/HAE/Rare Disease

Having a rare disease sucks, but sometimes it helps to cut your disease down to size mentally--especially if you can't do it physically! And, hey, laughing is better than crying,…

Continue Reading Which Hilarious Character is Your Rare Disease
Poll: Do You Have the Ankylosing Spondylitis Support You Need?

Poll: Do You Have the Ankylosing Spondylitis Support You Need?

  • Post author:Patient Worthy Contributor
  • Post published:October 15, 2015
  • Post category:Ankylosing Spondylitis/Rare Disease

Asking for help isn’t always easy for people living with a chronic illness. We don’t want to be defined by our disease, but, at the same time, our diseases can…

Continue Reading Poll: Do You Have the Ankylosing Spondylitis Support You Need?

She Needed a Liver, But What She Gives is What’s Special

  • Post author:Patient Worthy Contributor
  • Post published:September 21, 2015
  • Post category:Rare Disease/Tyrosinemia

Living with a serious illness affects more than one's physical health; mental health often suffers, too. Which is one reason Anna Barlow took note when she met Anna Sirieix. The…

Continue Reading She Needed a Liver, But What She Gives is What’s Special
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here
CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info