Way More Babies are Affected by Fetal Alcohol Spectrum Disorder Than We Originally Thought
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Way More Babies are Affected by Fetal Alcohol Spectrum Disorder Than We Originally Thought

While it seems to be common knowledge that drinking while pregnant is unwise, many children are harmed by the effects of fetal alcohol spectrum disorder, reported CNN. Older studies suggest…

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The FDA is Beginning to Accept New Endpoints and “Real World” Data in Clinical Trials
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The FDA is Beginning to Accept New Endpoints and “Real World” Data in Clinical Trials

According to a story from Charcot-Marie-Tooth Disease News, the U.S. Food and Drug Administration (FDA), under the leadership of commissioner Scott Gottlieb, has begun to change clinical trials by accepting…

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Patients as Partners 5th Annual Conference – US

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The only conference in the United States that shows guidance as how to involve patients through the process of clinical research. Industry Fees: $1,595 Early Bird - available until 2/09/18 $1,695…

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This Cancer Drug May Reduce Hearing Loss From Radiotherapy In Patients With Neurofibromatosis
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This Cancer Drug May Reduce Hearing Loss From Radiotherapy In Patients With Neurofibromatosis

According to a story from Medical Xpress, the addition of crizotinib with radiation therapy could help reduce hearing loss associated with the treatment in patients with neurofibromatosis II. Crizotinib is…

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Two Thirds of Pancreatic Cancer Patients Don’t Receive Needed Treatments. Why?
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Two Thirds of Pancreatic Cancer Patients Don’t Receive Needed Treatments. Why?

The Southern Daily Echo originally reported that a majority of pancreatic cancer patients don't receive life-extending treatment after diagnosis. Recently, the Pancreatic Cancer UK charity reported that only a small…

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A CRISPR Gene Editing Technique Could Fix Many of the Mutations Responsible For Duchenne Muscular Dystrophy
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A CRISPR Gene Editing Technique Could Fix Many of the Mutations Responsible For Duchenne Muscular Dystrophy

CRISPR gene editing technology is still mostly in its infancy, but the new tool is already causing a lot of excitement, particularly in the treatment of genetically-linked diseases. A recent…

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These Organizations Are Joining Forces To Use AI To Develop Improved Rare Disease Diagnostics
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These Organizations Are Joining Forces To Use AI To Develop Improved Rare Disease Diagnostics

According to a story from PressReleasePoint, a new partnership has developed to generate artificial intelligence technology that will help diagnose people with a variety of rare diseases. The partnership consists…

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This Pancreatic Cancer Treatment Currently In Development Just Got Orphan Drug Designation
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This Pancreatic Cancer Treatment Currently In Development Just Got Orphan Drug Designation

According to an article from kait8.com, the pharmaceutical company Yisheng Biopharma announced that YS-ON-001, a leading candidate for the company, received Orphan Drug Designation from the U.S. Food and Drug…

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A Widely Popular Allergy Medication Could Prevent Relapse in Neuromyelitis Optica
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A Widely Popular Allergy Medication Could Prevent Relapse in Neuromyelitis Optica

According to an article from brightsurf.com, a commonly used allergy medication called cetirizine (commonly marketed under the name Zyrtec) was able to prevent relapse in patients with neuromyelitis optica in…

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The Coriell Institute for Medical Research Recently Released N-Glycanase Deficiency Samples
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The Coriell Institute for Medical Research Recently Released N-Glycanase Deficiency Samples

According to an article from Newswise, the Coriell Institute for Medical Research announced the release of rare new N-glycanase deficiency samples. These samples will be available to researchers so that…

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