Doctors Call To Standardize Treatment in Patients With Juvenile Idiopathic Arthritis
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Doctors Call To Standardize Treatment in Patients With Juvenile Idiopathic Arthritis

According to a story from Specialty Pharmacy Times, medical professions are starting to recognize the need for a new standardized treatment plan for pediatric rheumatic diseases. Pediatric diseases are illnesses…

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The Discovery Of Blood Protein Biomarkers Will Help Monitor Treatment Response In Progeria
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The Discovery Of Blood Protein Biomarkers Will Help Monitor Treatment Response In Progeria

According to a story from EurekAlert, a recent study published in the journal Pediatric Research reveals new protein biomarkers that researchers can use to evaluate how patients with progeria have reacted…

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New Research Is Investigating The Molecular Origins of Primary Ciliary Dyskinesia
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New Research Is Investigating The Molecular Origins of Primary Ciliary Dyskinesia

According to an article from news-medical.net, researchers are beginning to delve into the causes of a rare lung disease called primary ciliary dyskinesia. This research is revealing previously unknown information…

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The Orphan Disease Center Just Announced Their 2018 Grant For CDKL5 Deficiency Disorder
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The Orphan Disease Center Just Announced Their 2018 Grant For CDKL5 Deficiency Disorder

The Orphan Disease Center in association with the University of Pennsylvania and the Loulou Foundation just announced their 2018 Pilot Grant Program for CDKL5 Deficiency Disorder. CDKL5 deficiency disorder (CDD)…

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Cognitive Impairment, Testing, and Disease Burden in MPS II Discussed at Satellite Symposium

Today, Professor Elsa Shapiro and Dr. Christina Lampe presented "Cognitive Impairment in Patients with MPS II: From Disease Burden to Cognitive Testing" at Satellite Symposium, an event sponsored by Shire…

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Satellite Symposium Discusses Long-Term Outcomes for MPS IVA and VI Patients
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Satellite Symposium Discusses Long-Term Outcomes for MPS IVA and VI Patients

Yesterday, a group of experts presented "Changing lives: Long-term outcomes of MPS IVA & VI patients" at the Satellite Symposium sponsored by BioMarin. The program began with insights on the…

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New Treatments For Chronic Kidney Disease Need To Keep Patients Employed, Study Says
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New Treatments For Chronic Kidney Disease Need To Keep Patients Employed, Study Says

According to an article from Nephrology News and Issues, medical experts are calling for new treatments for chronic kidney disease that will allow patients to continue working. Although treatments for…

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