Study Shows Eculizumab can Improve Outcomes and Quality of Life for Paroxysmal Nocturnal Hemoglobinuria Patients
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Study Shows Eculizumab can Improve Outcomes and Quality of Life for Paroxysmal Nocturnal Hemoglobinuria Patients

Paroxysmal nocturnal hemoglobinuria (PNH) occurs from a mutated PIG-Agene. This causes blood cells to be produced which don't have surface proteins. As such, the cells aren't protected adequately from the complement…

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Idiopathic Pulmonary Fibrosis: Antifibrotic Therapy Can Curb Exacerbations and Mortality
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Idiopathic Pulmonary Fibrosis: Antifibrotic Therapy Can Curb Exacerbations and Mortality

According to a story on medicaldialogues.in, a recent study has determined that antifibrotic treatment can reduce the rate of mortality and acute exacerbations in people living with idiopathic pulmonary fibrosis…

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A Study of Intravenous Immunoglobulin Used to Treat Multiple System Atrophy
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A Study of Intravenous Immunoglobulin Used to Treat Multiple System Atrophy

  A study found on Medscape confirms that the human immune system and the human brain are the most complicated in our biological systems. The two systems are responsible for…

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High Blood Pressure is Linked to Parkinson’s Disease in China’s Largest Ethnic Group
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High Blood Pressure is Linked to Parkinson’s Disease in China’s Largest Ethnic Group

  A recent article in Parkinson’s News Today announced that a new study indicates that high blood pressure has been associated with Parkinson’s disease in Singapore’s Han population. This is…

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FoundationOne CDx is Now FDA Approved as a Diagnostic Tool For ALK+ Non-Small Cell Lung Cancer
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FoundationOne CDx is Now FDA Approved as a Diagnostic Tool For ALK+ Non-Small Cell Lung Cancer

FoundationOne CDx is a comprehensive genomic profiling test that is tissue based. It is used to identify individuals diagnosed with ALK+ non-small-cell lung cancer (NSCLC) who will be eligible for…

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Technology Allows for Differentiation Between MS and Neuromyelitis Optica Spectrum Disorder Patients with Optic Neuritis
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Technology Allows for Differentiation Between MS and Neuromyelitis Optica Spectrum Disorder Patients with Optic Neuritis

A new study published in the journal Scientific Reports has helped explain the differences between neuromyelitis optics spectrum disorder (NMOSD) after optic neuritis (ON) and multiple sclerosis (MS). Although previous studies have…

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Study of the Week: Undeveloped Microbiota and Epithelial Barriers in Newborns Boost Bacterial Meningitis Risk
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Study of the Week: Undeveloped Microbiota and Epithelial Barriers in Newborns Boost Bacterial Meningitis Risk

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

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Phase 3 Trial for Non-Germinal Center Diffuse Large B-Cell Lymphoma is Still Enrolling Patients
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Phase 3 Trial for Non-Germinal Center Diffuse Large B-Cell Lymphoma is Still Enrolling Patients

A Phase 3 clinical trial for Non-Germinal Center Diffuse Large B-Cell Lymphoma in patients where it was previously untreated have just announced they are still recruiting participants. The trial is…

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Phase 3 Global Trial for Cholangiocarcinoma Testing a Single Agent is Well Underway
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Phase 3 Global Trial for Cholangiocarcinoma Testing a Single Agent is Well Underway

Updates from the Phase 3 clinical trial called FIGHT-302 were just released at the 2021 European Society for Medical Oncology World Congress on Gastrointestinal Cancer. The trial is comparing two…

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Survey Finds Cholangiocarcinoma Oncologists Could Improve Patient Care by Collaborating with Pharmacists
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Survey Finds Cholangiocarcinoma Oncologists Could Improve Patient Care by Collaborating with Pharmacists

A survey of oncologists has found that more education is clearly needed regarding cholangiocarcinoma. Specifically, more education would be beneficial regarding testing and targeting the mutations which cause the condition…

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New Study Has Demonstrated The Role of The Gut Microbiota in Neonatal Bacterial Meningitis
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New Study Has Demonstrated The Role of The Gut Microbiota in Neonatal Bacterial Meningitis

Bacterial meningitis is a severe condition that is linked to high mortality. Unfortunately, newborns are much more susceptible to bacterial meningitis. In fact, this infection occurs more than 30 times…

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Webinar: Using the Rare Disease Cures Accelerator for a DMD Progression Model
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Webinar: Using the Rare Disease Cures Accelerator for a DMD Progression Model

On July 21, 2021, Patient Worthy attended an online webinar presentation titled "How RDCA-DAP Can Help Inform Optimal Trial Design in Progressive Rare Disease." Organized by the Critical Path Institute…

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Scientists Discover That a Blood Pressure Medication Can Increase Immune-Boosting Cells
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Scientists Discover That a Blood Pressure Medication Can Increase Immune-Boosting Cells

  According to a recent article in Genetic Engineering News, findings by scientists at the University of Boston’s School of Medicine and Massachusetts General Hospital (MGH) have uncovered two plausible…

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