In the geographically small island nation of New Zealand, there are estimated to be as many as 300,000 people who live with various rare diseases or disorders. Unfortunately, like in…
According to a story from Scleroderma News, June is recognized as Scleroderma Awareness Month. While physical distancing as a result of the ongoing coronavirus/COVID-19 pandemic may keep some folks at…
June is recognized as Myasthenia Gravis Awareness Month. Primarily organized by the Myasthenia Gravis Foundation of America (MGFA), this event is focused on spreading awareness as well as boosting efforts…
Researchers all over the world are hard at work trying to develop both treatments for Covid-19 and vaccines for the illness. Professors of rheumatology at the University of Alabama, Randy…
The Jack McGovern Coats' Disease Foundation, a nonprofit patient organization committed to supporting critical disease research and raising disease awareness, is offering travel grants for recipients to attend the 2020…
According to a story from Biospace, the drug company Horizon Therapeutics plc has recently announced that the US Food and Drug Administration (FDA) has approved the company's drug teprotumumab-trbw (marketed…
After the 10th International Workshop on Waldenstrom’s Macroglobulinemia for researchers and clinicians, the IWWM10 International Doctor- Patient Forum will be held in the same place on the same day. If…
The clinical research process is a thorough and time consuming method in which new drugs, therapies, and medical devices are rigorously tested before being made available to the public. Through…
Put Europe on your calendar for 2018! Usher patients, researchers and family members welcome to the two-day Symposium in July. For more information, contact [email protected]
According to a story from the Washington Post, the US Food and Drug Administration (FDA) has cleared the approval of Epidiolex®, a solution whose active ingredient is a refined version…
According to a story from The Guardian, doctors are celebrating the effectiveness of an all new, experimental immunotherapy that was able to totally eliminate a case of metastatic breast cancer…
According to a story from PR Newswire, the pharmaceutical company BioMarin Pharmaceutical Inc. has recently announced that the U.S. Food and Drug Administration as issued approval for their product pegvaliase-pqpz, which…
According to a story from the National Hemophilia Foundation, the pharmaceutical company Novo Nordisk announced that its product REBINYN was now available for hemophilia B patients. The treatment is intended…
Come to the 14th Annual WORLDSymposium in San Diego to learn more about the latest news and research in lysosomal diseases! Discuss the most recent information surrounding lysosomal diseases to…
Warm up your November by attending the LGS Foundation's 5th International Family and Professional conference on Lennox-Gastaut Syndrome in Orlando Registration prices for adults and children with LGS (includes entry into…
Come explore Colorado while attending the annual and internationally recognized forum for training and education for Huntington disease researchers!
Come to the 31st Annual NACFC and be among 5,000 attendees, exhibitors, supporters, and staff from around the globe to learn more and talk about everything cystic fibrosis! Find out your registration fees…
ROME! Come and experience beautiful Rome as well as stimulate the exchange of ideas, form new collaborations among investigators and clinicians with different expertise, spark interest in these complex diseases among postdoctoral research…
Take a Florida style getaway to Orlando to attend the largest human genetics meeting and exposition in the world. Learn and hear from and among 6,500 scientific attendees and over…
Spend a day (or two) in Boston indulging your inner film fanatic and watching a compilation of rare disease films from across the globe! Many films are short and sweet…
Come to Canada to learn and talk more about acromegaly among specialists, professionals, advocates, patients and spouses! COST Acromegaly Patients & Spouses: FREE For all other attendees: $200.00 no refund…
Come join Global Genes in attending the 6th annual rare patient advocacy summit Meet rare disease advocates from all over the world in an educational conference setting to create, share,…
Come check out and celebrate the launch of and learn more about the NCATS online resource portal including: How to establish a patient registry How to drive patient-focused discovery and…
***Deadline for registration before the meeting: August 21 After this date, registration can be made onsite. Come explore the host city of the Olympic Games and one of the most beautiful…
Learn more about acromegaly at the most low maintenance seminar of all time—on your own computer! From 1:00PM-2:00PM EST on Wednesday, August 23, 2017, sign up to hear Dr. Adriana G.…
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