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Daily Archives: October 26, 2015

Home » Archives for October 26, 2015
Pregnancy and Chronic Illnesses Definitely Don’t Mesh, But Fear Not!
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Pregnancy and Chronic Illnesses Definitely Don’t Mesh, But Fear Not!

  • Post author:Farrah Fontaine
  • Post published:October 26, 2015
  • Post category:Behçet's/Rare Disease

We all have that one relative, who every time they see you, always asks, “So, when are you having kids?” or the mom who is desperate to be a grandmother.…

Continue Reading Pregnancy and Chronic Illnesses Definitely Don’t Mesh, But Fear Not!
Meme Monday: What Halloween Monster is Causing Your Rare Disease?

Meme Monday: What Halloween Monster is Causing Your Rare Disease?

  • Post author:PW Blogger
  • Post published:October 26, 2015
  • Post category:CAPS/CVID/Dystonia/FCAS/Tyrosinemia

Meme Monday has been taken over by some of the most treacherous monsters of Halloween and Hollywood lore. All week we are profiling each monster that has tied us all…

Continue Reading Meme Monday: What Halloween Monster is Causing Your Rare Disease?
Breakthrough! Why You Should Care About FDA HAE Designations

Breakthrough! Why You Should Care About FDA HAE Designations

  • Post author:James Ernest Cassady
  • Post published:October 26, 2015
  • Post category:HAE/Rare Disease

Recently, the FDA gave "breakthrough therapy" status to a potential new drug that may help prevent HAE attacks. But how does that affect you, the patient? What does "breakthrough therapy" really mean?…

Continue Reading Breakthrough! Why You Should Care About FDA HAE Designations
How to Avoid FH Rabbit Holes and Dig the Truth

How to Avoid FH Rabbit Holes and Dig the Truth

  • Post author:Alisha Stone
  • Post published:October 26, 2015
  • Post category:Familial Hypercholesterolemia/Homozygous Familial Hypercholesterolemia/Rare Disease

Familial hypercholesterolemia (FH),  a genetic disorder associated with extremely high levels of LDL cholesterol, can be frightening. Many people are diagnosed in infancy, and it’s not uncommon for even children…

Continue Reading How to Avoid FH Rabbit Holes and Dig the Truth
Wanted: Blood Donors with Big Throbbing Healthy Hearts

Wanted: Blood Donors with Big Throbbing Healthy Hearts

  • Post author:Alisha Stone
  • Post published:October 26, 2015
  • Post category:CGD/CVID/Primary Immunodeficiencies/Rare Disease/SCID

In case you didn’t know, October 11-17, 2015 marks the third anniversary of commemorating International Plasma Awareness Week. Sure, you might think that it’s just another ho-hum “awareness week” but…

Continue Reading Wanted: Blood Donors with Big Throbbing Healthy Hearts

OF INTEREST


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X-Linked Hypophosphatemia: Unnderstanding this Hereditary, Progressive, and Lifelong Condition


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