Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Daily Archives: January 8, 2016

  1. Home>
  2. 2016>
  3. January>
  4. 8
#NewYearNewMe: Chronically Ill and Happy Part 2

#NewYearNewMe: Chronically Ill and Happy Part 2

  • Post author:Patient Worthy Contributor
  • Post published:January 8, 2016
  • Post category:Dysautonomia/POTS/Rare Disease

To read Part 1 of Mari's #NewYearNewYou post, click here. Now, let's focus on the New Year shall we. What do I want for 2016? That's a loaded question! But, I'll…

Continue Reading #NewYearNewMe: Chronically Ill and Happy Part 2
Editor’s Choice: #NewYearNewYou Resolutions, Videos and More!

Editor’s Choice: #NewYearNewYou Resolutions, Videos and More!

  • Post author:Patient Worthy Contributor
  • Post published:January 8, 2016
  • Post category:CAPS/Cystic Fibrosis/Lyme Disease/Rare Disease

Hello Patient Worthians! Are you sticking to your New Year's Resolution so far? This week, we have more patient #NewYearNewYou contributions, the first of our video series, and a recipe that…

Continue Reading Editor’s Choice: #NewYearNewYou Resolutions, Videos and More!
“You’ll Outgrow it.” And Other Stupid Myths About Rare Diseases

“You’ll Outgrow it.” And Other Stupid Myths About Rare Diseases

  • Post author:Lady Kehveen Abernathy
  • Post published:January 8, 2016
  • Post category:CAPS/Rare Disease

With rare diseases come common myths. Whether you have HAE, CAPS, HIDS, FMF, or any other combination of letters, you've probably heard an eclectic array of myths. Here on Patient Worthy, we…

Continue Reading “You’ll Outgrow it.” And Other Stupid Myths About Rare Diseases
Is Weed the Miracle Cure for Myasthenia Gravis?

Is Weed the Miracle Cure for Myasthenia Gravis?

  • Post author:Erica Zahn
  • Post published:January 8, 2016
  • Post category:Myasthenia Gravis/Rare Disease

With public perceptions changing regarding the use  of medical marijuana (cannabis) in the United States, studies are being conducted to determine the possible disease states that could be treated with the regulated…

Continue Reading Is Weed the Miracle Cure for Myasthenia Gravis?
This is Your Brain on Microchips

This is Your Brain on Microchips

  • Post author:Ronald Ledsen
  • Post published:January 8, 2016
  • Post category:Dystonia/Rare Disease

Another science fiction trope may be moving closer to science reality. Smartphone and tablet-maker Samsung and medical device company Medtronic have joined forces to create something startling: Neural implants that…

Continue Reading This is Your Brain on Microchips

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info