La vida con AEH: 5 cosas que puedes hacer para preparar a tu hijo para ir a la escuela
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La vida con AEH: 5 cosas que puedes hacer para preparar a tu hijo para ir a la escuela
- Rare Disease News
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Georgetown Woman Finds Support After Living with Myasthenia Gravis
For Deborah Cooper, getting diagnosed with myasthenia gravis was the easy part. Everything that spun out of that diagnosis was what really turned her life upside down. It started innocently…
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Georgetown Woman Finds Support After Living with Myasthenia Gravis
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World Pulmonary Hypertension Day: Here’s the Scoop
For many patients with Pulmonary hypertension (PH), their path to diagnosis of this rare lung disease starts with the feelings of exhaustion and general fatigue. In fact, some patients may…
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World Pulmonary Hypertension Day: Here’s the Scoop
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Living with Myasthenia Gravis: Video Review
What's it like to live with myasthenia gravis (MG)? Let Olivia Truncale tell you: The 19-year-old college sophomore was diagnosed just over two years ago, shortly after her legs gave…
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Living with Myasthenia Gravis: Video Review
Helpful Suggestions or Harsh Judgement? Living with Rare Disease
While I truly believe that people are well-intentioned, their opinions and comments often miss the mark when it comes to what we experience living with dystonia, or any other chronic…
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Helpful Suggestions or Harsh Judgement? Living with Rare Disease
Chiropractic Care for Acromegaly
Patient Worthy had the privilege of attending the Acromegaly Community Conference in Chicago April 29th –May 1st. We met some incredible people (stories to come), learned some valuable information (risks of…
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Chiropractic Care for Acromegaly
