Editor’s Choice: Myasthenia Gravis Awareness and Dystonia Fashion

Happy Almost-Father's Day Patient Worthians! This week, we have some important information on the rare disease myasthenia gravis in the spirit of June being it's awareness month. Also, have you ever…

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New Treatment Gets to the Heart of CPT II
[Source: Pixabay.com]

New Treatment Gets to the Heart of CPT II

There's good news for people living with carnitine palmitoyltransferase (CPT) deficiency and their caregivers! Ultragenyx recently released data from an open-label study of the treatment triheptanoin. In the study, five infants…

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Nadador con espondilitis anquilosante supera los pronósticos, gana medallas
Statins May Do More Than Lower Cholesterol: They May Give IPF Drugs a Boost

Nadador con espondilitis anquilosante supera los pronósticos, gana medallas

En un momento dado, la medalla de oro ganando Singapur nadador Clemente Lim estaba postrada en cama durante dos días porque tiene espondilitis anquilosante, "Me daba miedo nunca nadar de…

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