Meme: Kindness = Strength
Don't let things as important as tenderness and compassion ever be mistaken for weakness or fragility!
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Show us your Gratitude Attitude!
Sociologist Georg Simmel, calls Gratitude the “ moral memory of mankind”. But researchers tell us that gratitude is more than a moral or ethical acknowledgement of help of some kind.…
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Do YOU Know the Difference Between Cushing’s Disease and Syndrome?
In my humble opinion, the Urology Care Foundation has set the standard when it comes to providing factual information about Cushing’s syndrome (CS). And if you or your loved one…
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The 2016 Presidential Campaign: An IPF Love Story
2016 has been a very bizarre, upsetting year. As an American, I can’t wait until I can bury most everything about 2016 in the back corner of the history books.…
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The Astonishing and Sad Reality of Butterfly Children
I always have a knee-jerk reaction that borders on anger when I read about babies who are dealt an unfair hand in the rare disease world. It seems incredibly unfair…
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CRPS Deals Out Breathtaking Pain, No One Knows Why
Lora Rossi once had a vibrant, active life. She spent her summer days at the beach with friends, she had a job she really enjoyed, and her future looked bright.…
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Live Facebook Event Tonight! Discussions about Grief
Author of Permission to Mourn, Tom Zuba, has developed a new way to “do grief”. His own personal losses of daughter, son, and wife have led him on the path…
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Fainting Is Not For The Faint Of Heart… Really.
Have you ever fainted? I have. Three times and all were related to receiving shocking news. The first time was when my grandmother unexpectedly passed away. The second time was…
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For Focal Dystonia, What is the “Golden Crown?”
Legend has it that Archimedes once ran through the streets of Syracuse naked yelling, “Eureka!” because he had discovered an amazing scientific principle. (BTW, if you're thinking, "What on earth…
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What Should You Know About Dystonia in Children?
The days of summer are at a close. The temperature has finally dropped, and there’s a chill in the air. A new season is upon us. Finally! School is back…
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5 cosas perdidas con acromegalia (y cómo mejorarlos)
Cuando se tiene una enfermedad rara, las personas están obligados a darle la mirada. Usted sabe que el uno. Se dice: "Oh, bendita tu corazón; que ha perdido tanto ".…
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