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Daily Archives: December 12, 2016

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It’s Time to Shine the Research Lights on Trigeminal Neuralgia
[Source: Pixabay.com]

It’s Time to Shine the Research Lights on Trigeminal Neuralgia

  • Post author:Erica Zahn
  • Post published:December 12, 2016
  • Post category:Trigeminal Neuralgia (Tic Douloureux)

You never know what you're going to learn on any given day, which is part of what makes life so interesting. Here's an example: I was sitting at the gate…

Continue Reading It’s Time to Shine the Research Lights on Trigeminal Neuralgia
You Gotta See This Innovative New Research for IPF
Source: pixabay.com

You Gotta See This Innovative New Research for IPF

  • Post author:PW Blogger
  • Post published:December 12, 2016
  • Post category:Idiopathic Pulmonary Fibrosis/IPF/Rare Disease

Movies, television shows, and books can create a vision of a world with endless possibilities. The future can be portrayed in ways that we would find impossible in the present…

Continue Reading You Gotta See This Innovative New Research for IPF
The Truth About Addison’s Disease and Useful Technology
Pixabay

The Truth About Addison’s Disease and Useful Technology

  • Post author:Sabina Kennedy
  • Post published:December 12, 2016
  • Post category:Addison's Disease/Rare Disease

Are you looking for an Addison’s disease community so you can share similar experiences and learn more together? If so, Circle of Moms hosted by Popsugar may have the online…

Continue Reading The Truth About Addison’s Disease and Useful Technology
Seattle Police Officer Saved by the People He Served for a Quarter Century
Source: www.pixabay.com

Seattle Police Officer Saved by the People He Served for a Quarter Century

  • Post author:Erica Zahn
  • Post published:December 12, 2016
  • Post category:Chronic Inflammatory Demyelinating Polyneuropathy/Rare Disease/Timely

For 26 years, police officer Dave Clement, put his life on the line every day for the people of Seattle. He often worked with the poorest of the poor, helping to…

Continue Reading Seattle Police Officer Saved by the People He Served for a Quarter Century
21st Century Cures Act: Cautious Optimism
stevepb / Pixabay

21st Century Cures Act: Cautious Optimism

  • Post author:Patient Worthy Contributor
  • Post published:December 12, 2016
  • Post category:Rare Disease

For many, the 21st Century Cures Act could mean the difference between life and death: It will give patients access to drugs that they previously didn't have. Personally, I am…

Continue Reading 21st Century Cures Act: Cautious Optimism
Un vistazo a la vida POTSY de Mari

Un vistazo a la vida POTSY de Mari

  • Post author:Patient Worthy Contributor
  • Post published:December 12, 2016
  • Post category:Dysautonomia/POTS

¿Se ha sentido perdido en su propio cuerpo alguna vez? ¿Alguna vez ha perdido temporalmente su audiencia debido a la masiva sonando en los oídos? ¿Usted ha tenido el mundo…

Continue Reading Un vistazo a la vida POTSY de Mari
The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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