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Daily Archives: January 13, 2017

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Editor’s Choice: Our Mind is a Drug and the Dangers of Superbugs

Editor’s Choice: Our Mind is a Drug and the Dangers of Superbugs

  • Post author:Patient Worthy Contributor
  • Post published:January 13, 2017
  • Post category:Cystic Fibrosis/Cystinosis/Dystonia/Epidermolysis Bullosa/Rare Disease

Who is excited for another long weekend coming up this Monday?! To kick off your three-day weekend, take a look at these intriguing stories... Researchers have identified a superbug that…

Continue Reading Editor’s Choice: Our Mind is a Drug and the Dangers of Superbugs
The Honest Truth About Superheroes and CRPS
Source: pixabay.com

The Honest Truth About Superheroes and CRPS

  • Post author:EmpatheticBadass
  • Post published:January 13, 2017
  • Post category:Complex Regional Pain Syndrome/Rare Disease

Has your physical therapist been suggesting standing like a superhero as a cortisol-lowering treatment for your complex regional pain syndrome (CRPS)? Well, s/he might just be slumping her or his…

Continue Reading The Honest Truth About Superheroes and CRPS
Why You Need to Talk About Organ Donation and IPF
Source: pixabay.com

Why You Need to Talk About Organ Donation and IPF

  • Post author:PW Blogger
  • Post published:January 13, 2017
  • Post category:Idiopathic Pulmonary Fibrosis/IPF/Rare Disease

The death of a loved one is no doubt one of the most painful experiences in life. The grief, the confusion, and the emptiness that follows can sometimes feel unbearable.…

Continue Reading Why You Need to Talk About Organ Donation and IPF

How in the World Did This Mother NOT Fall Apart?

  • Post author:Sabina Kennedy
  • Post published:January 13, 2017
  • Post category:Alveolar capillary dysplasia/Rare Disease

“Motherhood is the hardest job you’ll ever love.” I’m not sure who first coined that phrase, but its truth becomes clearer to me every day. And nowhere is that truth…

Continue Reading How in the World Did This Mother NOT Fall Apart?
Why Should You Care About International MPS Awareness Day?
Source: pixabay.com

Why Should You Care About International MPS Awareness Day?

  • Post author:EmpatheticBadass
  • Post published:January 13, 2017
  • Post category:Mucopolysaccharidosis/Rare Disease

You may hate that these days everything seems to turn pink for the whole month of October. Or you may appreciate efforts to associate the color pink with Breast Cancer…

Continue Reading Why Should You Care About International MPS Awareness Day?
Esta pintura es mortal. Lo que necesitas saber.
Free-Photos / Pixabay

Esta pintura es mortal. Lo que necesitas saber.

  • Post author:Patient Worthy Contributor
  • Post published:January 13, 2017
  • Post category:CVID/Primary Immunodeficiencies/Rare Disease

Los hospitales son el germen de postrado, lugares infestados de bacterias. -especialmente las infecciones adquiridas en los hospitales infecciones por estafilococos, son conocidos por ser una causa principal de muerte…

Continue Reading Esta pintura es mortal. Lo que necesitas saber.

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The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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