Looking Back: This Mom’s Video Could Make CVID Awareness Go Viral

We want to celebrate our patient contributors and writers for their efforts in helping the rare community, bringing awareness, understanding and compassion to often neglected disease. The following article was originally…

Continue Reading Looking Back: This Mom’s Video Could Make CVID Awareness Go Viral
Morquio Syndrome: How One Inspirational Man Refused to Take “No” for an Answer
[Source: pixabay.com]

Morquio Syndrome: How One Inspirational Man Refused to Take “No” for an Answer

I have a new hero, an Irishman who’s not only gotten some great press and notoriety, this guy has struck gold in the hearts of the Morquio syndrome community! In…

Continue Reading Morquio Syndrome: How One Inspirational Man Refused to Take “No” for an Answer
Close Menu