Meme: What Lies Within Us
No matter what happened in your past or what may happen in you're future, it's no match for you. You are tough enough to handle it. Your inner strength is…
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Meme: What Lies Within Us
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IPF: What You Need to Know About Benefits of Exercise
Listen up: Scientists in Japan may be onto something big. They’ve discovered there is a significant correlation between the amount of fat vs. muscle that people have and how it…
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IPF: What You Need to Know About Benefits of Exercise
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Buy Your Tickets Now for a PF Broadway Extravaganza Feb. 27!
Broadway Belts for Pulmonary Fibrosis is a yearly musical and comedy fundraiser to fight pulmonary fibrosis (PF). Created 7 years ago to honor the memory of Associated Press theater critic…
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Buy Your Tickets Now for a PF Broadway Extravaganza Feb. 27!
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Is This a Cystic Fibrosis Breakthrough?
As a Registered Nurse, I think the main thing that I do is educate people. It can be the actual patient, the caregiver, and/or the family. Nurses spend most of…
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Is This a Cystic Fibrosis Breakthrough?
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Hurry Up! Register for the 2017 CRF Day of Hope Family Conference
On Thursday, March 30 – Saturday, April 1, 2017 at the Island Hotel, Newport Beach, California, members of the cystinosis community will gather to support their loved ones, suffering from…
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Hurry Up! Register for the 2017 CRF Day of Hope Family Conference
Craniofacial Syndromes Rarely Gorlin-Chaudhry-Moss Syndrome
Gorlin-Chaudhry-Moss, or GCM, is an inherited disorder that falls under the umbrella of craniofacial syndromes. While the fetus is in utero, premature closure between bones in the skull occurs, and that…
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Craniofacial Syndromes Rarely Gorlin-Chaudhry-Moss Syndrome
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Rolling with the Punches of Cushing’s Disease
I read the most AMAZING post—and I mean AMAZING post (I am not kidding! OMG!) written by a woman who has been living with Cushing’s disease for less than 5…
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Rolling with the Punches of Cushing’s Disease
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Are You Helping Lysosomal Diseases Research and the World This Week?
This week, WorldSymposia™ is having their 13th Annual WORLDSymposium in San Diego! The goal of the symposium is to help researchers build a better understanding around lysosomal disease diagnostics, areas that…
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Are You Helping Lysosomal Diseases Research and the World This Week?
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Unbelievable Abilities of a Mastocytosis Service Dog in NC
We’ve all walked passed a seeing eye dog on duty. The ability of the dogs (and trainers) to learn and react to so much in a safe way is utterly…
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Unbelievable Abilities of a Mastocytosis Service Dog in NC
Este hombre cree en una curación para la distonía. ¿Y Vos?
El ha sido presentado en el National Geographic Channel. Le ha dado la mano al presidente Obama. Ha sido detenido por el servicio secreto. Incluso después de todo eso, Jason Dunn sigue…
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Este hombre cree en una curación para la distonía. ¿Y Vos?
