Editor’s Choice: Consequences of Unintentional Exploitation in Rare Disease

Happy Spring Patient Worthians! This week we have pieces from two rare women, one battling the rare disease pemphigus vulgaris, part of the pemphigus and pemphigoid family. The other is…

Continue Reading Editor’s Choice: Consequences of Unintentional Exploitation in Rare Disease
When Your Child Has Special Needs, So Do You! Seek Support.
https://pixabay.com/en/dad-mom-love-hand-family-baby-1716160/

When Your Child Has Special Needs, So Do You! Seek Support.

Approximately one in 5,000 babies are born with a birth defect called gastroschisis. When a baby's intestines are protruding through a hole in the stomach wall resulting in the intestines being…

Continue Reading When Your Child Has Special Needs, So Do You! Seek Support.
2017 Muscular Dystrophy Association Scientific Conference: A Beacon of Light!
mohamed_hassan / Pixabay

2017 Muscular Dystrophy Association Scientific Conference: A Beacon of Light!

2017 Muscular Dystrophy Association Scientific Conference was a beacon of light! Researchers from academic medical centers,  pharmaceutical companies, children’s’ medical centers, biotech, engineering,  and veterinary medicine came together to share…

Continue Reading 2017 Muscular Dystrophy Association Scientific Conference: A Beacon of Light!
Donate Blood in the Name of Bleeding Disorders Awareness Month
https://pixabay.com/en/blood-donation-give-732298/

Donate Blood in the Name of Bleeding Disorders Awareness Month

Let's talk blood donation. I recently spoke with a man from a small African country who suffers from hemophilia. He told me that when he was growing up, there was no…

Continue Reading Donate Blood in the Name of Bleeding Disorders Awareness Month
Go Loco for Coconuts During National Nutrition Month
Look at this guy, providing innumerable health benefits in a wide array of food groups and he STILL has time to go to the beach. Superfood indeed! https://pixabay.com/en/coconut-beach-sand-sand-beach-boat-1577282/

Go Loco for Coconuts During National Nutrition Month

There is something you should know about me that will put this subject into some better context. I love food. I live for food, I really do. And it's been a…

Continue Reading Go Loco for Coconuts During National Nutrition Month
Close Menu