When a baby is born prematurely, things can get complicated pretty fast. The world is a challenging place for a child whose body isn't quite equipped to function on its…
Gatorade and other sports drink commercials often feature super athletes pushing themselves to the point of exhaustion, taking a swig from a sports drink, and then rallying to set new…
In 2014, Stephen Hawking, one of the world's leading thinkers and most famous faces of amyotrophic lateral sclerosis (ALS), spoke out about the dangers of full artificial intelligence (AI). Hawking…
What if there was a non-invasive option for patients who need surgery for Parkinson's disease? Something that involved no scalpels, no incision, no opening of the skull. A new study…
Two years ago, a seven-year-old boy from Syria was in dire condition. 80% of his skin was gone; his entire body covered in wounds and abrasions. He still had some…
Warwick Davis is a big name within the Star Wars community. Those that follow the movie universe religiously will know him for his role as Wicket the Ewok in Return…
The FDA makes decisions that determine the lives and treatments of patients with rare diseases. Many of these people who make these decisions aren't impacted by the disease in their…
Two-year-old Clark Cutler's parents felt alone when dealing with his rare disease, until they stumbled upon the United Leukodystrophy Foundation. Clark was diagnosed with Pelizaeus-Merzbacher disease when he was just…
In general, sarcoidosis can affect various organs in the body including the lungs. Sarcoidosis causes granulomas, which are tiny masses of tissue clusters, to form. This leads to malfunctioning or…
In an article by Wendy Henderson on sclerodermanews.com, joint stiffness, arthritis, joint contractures, tendon pain, and nerve pain are the most common causes of pain for people living with scleroderma. The…
When you hear your doctor say the C word, it feels like the whole world stops or launches into fast forward. I’ve spoken to many people who have had that…
Zero. Nada. Zip. Usually having nothing isn't a good thing, but in the case of people with uncontrolled seizures--like those that occur with Dravet syndrome--zero (as in no seizures) is…
Whether you’re dealing with chronic myelogenous leukemia (CML), chondrosarcoma, neuroblastoma, or the host of other pediatric cancer diagnoses, it’s the actual diagnosis that can take your breath away. You can…
Meghan Waldron, a 16-year-old girl in Massachusetts, disregards comments about her size, “Sure I’m small, but so are poison dart frogs!” Meghan runs track and country, plays violin and cello,…
Are you grateful for bile? You should be. But chances are you never think about the importance of this chemical compound that's found in the liver--until it's not there, or…
Did Wellmark Blue Cross and Blue Shield cross the line? Leading hemophilia groups, National Hemophilia Foundation (NHF), Hemophilia Federation of America (HFA), and Hemophilia of Iowa (HOI) believe that they…
Karen McLaughlin's exhibition Critical Path, hangs in at the Martin Batchelor Gallery until November, 30th. Her exhibit includes a combination of soft graphite drawings and bolder pastel renderings. The work is delicate,…
For now, Ann Marie Harte’s five-year-old son, Lewis, can still walk. He can no longer run, and he has a hard time with the stairs. The trampoline exhausts him, and…
Lawyers in Texas were enraged. They demanded the government give a 10-year-old girl with a rare disease back to her family. Rosa Maria Hernandez is a 10-year-old girl with cerebral…
We've heard a lot about the biology behind Zika's causes of microcephaly but haven't heard a lot about the patients themselves. Keegan and Corey Kistenmacher had their daughter Cassidy on…
There are an estimated 7,000 rare diseases and each one takes its toll. The effects aren't just felt by the person with the condition, but also on those who care…
It's became common knowledge to the healthcare community that the Zika virus was the source of microcephaly, a birth defect that causes baby's heads to develop much smaller than they…
Lung Cancer Awareness Month started with a bang at the Press Conference and Panel Discussions today in the Holeman Lounge of the National Press Club. Two panels of renowned lung…
At some point in your life, you might have taken a melatonin supplement from a bottle to get to sleep, or to get over jet-lag. Your body naturally produces melatonin…
Eleven-year-old Talia Duff finds herself in the rare situation of being one of only 22 people in the world to suffer from a rare disease. Last year, Jocelyn Duff received…
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