According to stories from Wave3 News and WHAS 1, high schooler Jesse Schott of Bullitt County is in his third battle with brain cancer. At his local high school, Schott is…
Talk show titan Wendy Williams (How you doin'?!) announced at the top of her daily talk show that she has been diagnosed with the rare disease Graves’ disease and hyperthyroidism. Graves' disease…
Prince William has taken the last several months to get out and educate himself in worlds he's unfamiliar with. Today reported his recent venture to observing robotic surgery, which came…
February 28th has become an internationally recognized day for Rare Disease awareness and advocacy. Originally reported by Rare DR, Marquette University, in conjunction with Harmony 4 Hope, H4H, will put…
According to a story from MedicalXpress.com, a team of Chinese researchers successfully regenerated lung tissue in a patient using stem cells transplants. Although it is still in its infancy, growing…
Lydia, a 16-year-old student at Ng'iya Girls High, was sent home permanently due to her rare disorder, reports Daily Nation. Lydia suffers from a disease called Cord Ischemia, and the…
According to a story from BBC News, a total of around 20,000 people in the UK were born with spina bifida and major brain damage after their mothers were given…
According to a story from Business Wire, selumetinib, a drug in development for the treatment for neurofibromatosis type 1, was recently granted Orphan Drug Designation by the Food and Drug…
Bridget Ames is a delightful, bright, smiling ball of energy who was told all the odds would be against her at a young age. Originally reported by Cape Cod Times,…
The Westmorland Gazette reports that a new drug called Perjeta, has been given the thumbs up to treat women with metastatic breast cancer in England. Metastatic breast cancer is when one's…
The Lewis family has lived through it all. Their first born was diagnosed with spinal muscular atrophy (SMA) and did not live long, having passed away in 2013, reports Deseret News. And…
The O'Sullivan family had three very healthy babies before Drake was born. His blue eyes energetically said hello and his weight met all health standards, yet it wasn't until three…
According to an article from Parkinson's News Today, a recent analysis testing transcranial magnetic stimulation demonstrated that the procedure was not effective in treating the depression that is a common…
According to a story from the Irish Mirror, eleven year old Cezy Fosca, who has a rare condition called Morquio syndrome, has lost access to the only drug available that…
According to a story from the Vancouver Sun, five rare disease drugs just received coverage in British Columbia. The funding comes from savings accumulated thanks to a recent agreement that…
According to a story from news-medical.net, a recent study that the reduced expression of miR-125a-5p results in an increase in the concentration of the protein TIMP-1. Prior research has associated…
A new digital platform has been created with hopes to assist cystic fibrosis (CF) patients at the comfort of their own homes, limiting hospital visits, reports Evening Standard. This new…
Originally reported by The Jerusalem Post, many adopted children from Eastern European countries suffer from fetal alcohol spectrum disorder caused by their mothers drinking alcohol excessively when pregnant. Many Israelis families…
According to an article from globenewswire.com, the pharmaceutical company Amicus Therapeutics announced that the Food and Drug Administration (FDA) has the company's New Drug Application for migalastat with filing for…
Sailormen, Inc. represents one of the largest franchise groups of Popeyes Louisiana Kitchen restaurants in the United States. The company includes 136 stores across six states. How does this related…
One of the most impressive moments of childhood is when a young child takes his or her first steps. Natalie Essex, age four, loves to walk. For Natalie, spinal muscular…
According to an article from news-medical.net, a group of researchers from the Telomere and Telomerase Group at the Spanish National Cancer Research Centre have been able to pin down the…
According to an article from Newswise, another recent study is providing further support to the connection between severe gum disease and the development of certain types of cancer. Periodontitis is…
Drugs reports a new study revealing the harmful effects of Zika virus in pregnant monkeys, which might have correlation to the known linkage between Zika and diseases such as microcephaly.…
February is Eisenmenger Syndrome Awareness month. Eisenmenger syndrome is very rare and devastating, so it deserves our attention. Let's get to know a little more about this heart condition. Eisenmenger syndrome…
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