Just this last June, a new drug successfully used to treat metastatic breast cancer patients in England, has been denied for a third time by Scottish Medicines Consortium (SMC), as…
The Alsabaa family not only has to deal with their 6-year-old son ,Tony, fighting children's idiopathic arthritis, but they are also not allowed to be in the States with him…
According to a story from CTV Vancouver Island News, a charming young child known affectionately as 'bus boy' died in his sleep on Saturday, January 27th. Dominic Orr was only…
Shaquem Griffin, a linebacker from the University of Central Florida receives a ton of buzz because he's an amazing athlete. Point blank. As he should. Originally reported by Rare Disease…
In an article posted by the Wyoming Medical Center, Dr. Adam Linck clears up some common questions concerning hereditary hemochromatosis. People living with this condition have an excess amount of…
While she's constantly smiling and full of energy, little girl Makenzie Cadmus struggles with a rare condition known as epidermolysis bullosa, reports News 12 Long Island. The rare disease has…
For people who don't live with chronic painful conditions, such as hepatic porphyria, it's hard to imagine the type of intense pain Colin McEwen was in -- both physically and…
A wealthy do-gooder is championing Idiopathic Pulmonary Fibrosis (IPF). No, it's not Tony Stark (a.k.a. Ironman). But there is a mega-force super power uniting global innovators, researchers, and healthcare entrepreneurs…
Just recently reported by BBC News, Jake Coates made a hard decision to stop attempting to have a child through the surrogate route after two failed attempts. Not even two…
Sophia Campa-Peters, a little 9-year-old suffering from a rare disease that resulted in several strokes, had a successful brain surgery just a few weeks ago, as reported Lubbock Online. The…
University of Glasgow scientists might have just come across an incredible new approach to providing patients with pharmaceutical medications on demand, reported first by International Business Times. This new technology…
16-year-old Teenager Ciara Micks of Limerick, Ireland, tries to remain positive despite an unsettling situation regarding next steps to treat her EDS, Ehlers-Danlos Syndrome, reports Limerick Leader. Ciara deals with…
11-year-old Nolan Cyr is not like anyone else his age. When facing round after round of chemo in the hospital to fight his cancer, it wasn't himself he was thinking…
According to a story from Independent, cumbersome delays and possible funding cuts are severely hampering England's National Health Service (NHS). These delays are proving very costly for patients with long…
Zaida was 3-years-old attending her normal yearly check-up with expectation that all was well, yet they quickly learned six days later of her terrifying cancer diagnosis, reports Daily Camera. Little…
Tyler Chambers, 9-years-old, suffers from scoliosis, with a 65 degree bent spine. His mother is fighting to get him the surgery he needs to rid away his intensifying pain, reports…
According to an article from Newswise, a team of researchers are studying tissue engineering for the repair of knee injuries such as a torn meniscus. The meniscus is the section…
According to a recent article from BioSpace, a study of Accuray's CyberKnife radiosurgical system showed good results with the new technology. The CyberKnife system projects radiation beams from multiple angles…
Easton was born at thirty-six weeks gestation on January 6, 2017. He was almost immediately taken to the NICU for something called PPHN (Persistent Pulmomary Hypertension), Easton was intubated for…
February 14th is Valentine's Day! Make sure to treat your valentine to a special day - and while your at it, spread the word that February 14th is also National…
Andy Trapp is a videographer who runs AB Trapp Productions, a small business documenting weddings and family occasions. He has been living with uncontrolled PKU since the age of 8.…
NBCNews Chief Foreign Correspondent, Richard Engel, opened up about one of the hardest phone calls he ever had to receive-- the call where he received the diagnosis of Rett syndrome for…
According to a story from Newswise, The University of Adelaide in Australia received a $1.19 million grant in order to spearhead an international research project. The project's aim is to…
There are fifty genetic diseases that can be characterized as lysosomal storage diseases (LSDs). Gaucher disease can be characterized as such. LSDs make up about one in every 8,000 births…
In a recent press release, the Patient Access Network (PAN) Foundation announced the opening of a new program that will help people living with hemophilia pay for the cost of…
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