According to a story from BBC, Alex Hill was just eight-years-old when his mother, Sarah, started forming a hunch that something was off. The first warning sign came when Alex…
Many times, diseases can take very physical tolls on a person’s body. These physical symptoms can sometimes be uncomfortable, they can be painful, and sometimes they may even be embarrassing…
Last week saw the Food and Drug Administration’s (FDA) approval of Aimovig. Aimovig (generically referred to as erenumab-aooe) is a novel approach to treating migraines. It boasts the ability to…
Scientists working at the Broad Institute of MIT and Harvard are trying to build a collection of every drug ever developed. They are planning on using the collection to re-purpose…
According to a story from EPM Magazine, the pharmaceutical company Orchard Therapeutics received Rare Pediatric Disease Designation for its gene therapy drug candidate OTL-200. The therapy is in development for…
According to a story from Financial Buzz, the pharmaceutical company Albireo Pharma recently announced that the first patient has been enrolled in its Phase 3 trial testing its experimental candidate…
How far would you go to stop cancer? Not metaphorically. Literally. Caryn Lubetsky has an answer. It’s the distance between Key Largo and Key west. Caryn Lubetsky is an attorney,…
A clinical trial that is investigating a drug designed to treat ulcerative colitis has completed patient enrolment, reports Business Wire. Ulcerative colitis is a long-term inflammatory bowel condition. The severity…
A team of researchers at Imperial College Lonon in the UK have carried out studies that suggest it may be possible to use gene editing to treat pancreatic cancer, reports…
This patient story is written by PW Contributor Kim Hartgraves. I was in the military for nine and a half years, until I had to accept an honorable under medical…
The U.S. Food and Drug Administration (FDA) has just approved a subcutaneous version of a drug called Actemra (tocilizumab) for treating patients with active polyarticular juvenile idiopathic arthritis (PJIA) who…
According to a story from MD Magazine, the FDA has recently approved the first multiple sclerosis treatment catered to children with the disease. In this instance, the agency did not…
According to a story from news-medical.net, researchers working with the Institute for Experimental Pediatric Endocrinology of the Charité - Universitätsmedizin Berlin were able to successfully treat young patients that were obese…
Energy industry leaders such as Love’s and Trillium recently held a fundraiser in Houston, Texas. The funding supported Texas Children’s, the local branch of Children’s Miracle Network Hospital. One unique…
As someone who has suffered with chronic vertigo for the past year and a half, and who deals with a chronic vestibular condition, I know all too well how debilitating…
Happy Friday, everybody! This week we're highlighting a celebration of rare moms, thoughts on the value of prayer in the rare community, and a PBC patient offering guidance on how…
According to a story from floridahospital.com, Huey Lewis, the front man and vocalist of the highly successful pop rock band Huey Lewis and the News, was recently diagnosed with Meniere's…
According to a story from azcentral.com, the Trump administration has decided to roll back some budget cuts that put the continued existence of regional Hansen's disease clinics in jeopardy around…
Researchers at Western University and the Lawson Health Research Institute have found that increased water drinking does not slow the decline of kidney function in patients with chronic kidney disease,…
Patient Worthy’s partner, The MDS Foundation, will be hosting another wonderful event for MDS patients and caregivers. Event Summary: Whether you are a newly diagnosed patient, a long-term survivor, or a…
The hemoglobin A1C test is a test that is commonly used to determine if patients have diabetes. A study last year in February 2017, by the American Medical Association found…
A woman from the UK, whose husband was diagnosed with Parkinson's disease many years ago, has the unique distinction of being able to detect the disease in patients through a…
Last week Patient Worthy attended ALD Life’s Community Weekend 2018, where Anne and Joel Buckland from the marketing agency We Do Stories talked about how to bring attention to rare…
Sunday, May 20th is World Autoimmune Arthritis Day! The global awareness day is aimed at raising money, consciousness, and solidarity for the millions of people who suffer from one of many arthritic…
According to a story from The Independent, the 60 years of blood donations from a single man may be directly responsible for saving the lives of 2.4 million babies. The…
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