If you or someone you know has ADPKD, email us at [email protected]. We'd love to hear from you about your experience! What is PKD and ADPKD? PKD (polycystic kidney disease)…
According to a story from CheckOrphan, Durhane Wong-Rieger, the CEO of the Canadian Organization for Rare Disorders, says that the Canadian health system has been letting down the roughly three…
According to a story from nbcnews.com, a recent map from the Centers for Disease Control and Prevention (CDC) indicates that children have the highest rates of cancer in the Northeast.…
Our partner, the MDS Foundation, is sponsoring another free event for patients with MDS and caregivers. Event Summary: Whether you are a newly diagnosed patient, a long-term survivor, or a caregiver…
Elmo and friends are here to help! - thanks to the good people of The National Association of Community Health Centers (NACHC)! For those who have never heard of the NACHC,…
On August 16th, 2018, Aretha Franklin, the "Queen of Soul," passed away at age 76. Aretha will be immortalized for generations because of the success of her classic soul ballads…
Gabriel Low, a 17-year-old from Hawaii, just completed a 3,000-mile bike ride across the country. He’s been riding since June 11th when he embarked from Seattle, WA to raise awareness,…
The Beginning My story began in February 2011. On January 10th, 2011, my husband and I were involved in an accident in which we slid off the side of a bridge 10 feet face…
A recent study published in the journal Clinical Cancer Research has found that a certain protein called KIM-1 may be able to predict renal cell carcinoma up to five years before…
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