According to a story from MedicalXpress, a group of international scientists spearheaded by researchers at the University of Colorado have managed to identify certain genetic mutations that are connected to…
According to a story from the Toronto Sun, the Canadian Agency for Drug and Technologies in Health (CADTH) recently announced that it would not be recommending the funding of the…
A team at the Research Institute of the McGill University Health Centre (RI-MUHC) in Canada is working to find a treatment for nephropathic cystinosis, a rare genetic disorder that affects…
According to a report by biopharmadive.com, Pfizer announced they will be dropping support for an experimental Duchenne muscular dystrophy treatment. The company intends to see if the treatment may be…
In order to improve the lives of patients for any illness, we all know research is an essential step. We also know that the most accurate research is derived from…
The Noah’s Ark Foundation For Sickle Cell, an NGO based in Lagos, Nigeria, is working to support people with sickle cell disease. In a recent interview with the Nigerian Tribune,…
According to a report by CTV News, a number of clinics across Canada are offering an unproven treatment. These treatments focus on expensive and unverified stem cell therapies. The treatments…
According to a story from marketscreener.com, the drug development startup Endocyte has recently reached $1.5 billion in total value. This biopharmaceutical company has been focused on developing therapies for two…
A recent study conducted by PLOS Biology has revealed the importance of Active-DHA in the brain, particularly as it is still developing. This could mean big things in terms of…
According to a story from CNN, a rare disease called acute flaccid myelitis has been cropping up in Minnesota lately, and six kids have been diagnosed with the illness since…
Hannah Evans, a 27-year-old woman from South Wales with several rare diseases, has reached her £37,500 fundraising goal that will support her trip to America to access an experimental and…
Lisa Clayton has been diagnosed with cancer as many times as she's given birth. She's a mom of 5, and she has just heard the news "you have cancer" for…
September was Childhood Cancer Awareness Month and Sickle Cell Awareness Month. To mark to occasion, the Aflac Cancer and Blood Disorders Center at the Children’s Healthcare of Atlanta released a…
HPV or human papillomavirus is the most common sexually transmitted disease in the US. It is so common that most sexually active people will catch the virus at some…
According to a story from Boston Health News, The US Food and Drug Administration's Accelerated Approval program is being used to approve a steadily growing number of drugs in recent…
Researchers have previously found that patients with cancer who live in more rural locations have worse outcomes than those from urban places. However, it isn’t clear what causes this pattern.…
October is Trigeminal Neuralgia Awareness Month! One way you can honor this month is by signing TNnME: Intl Trigeminal Neuralgia and Me's petition for the World Health Organization (WHO) to add Trigeminal Neuralgia…
A new neuromuscular research center has opened at the Ottawa Hospital. The new center will allow patients living with neuromuscular conditions, such as muscular dystrophy and ALS, to be a…
According to a story from PR-Inside, the biotechnology company Saniona recently announced that the second part of its Phase 2a clinical trial testing Tesomet as a treatment for Prader-Willi syndrome…
The United States Food and Drug Administration has awarded Fast Track designation to an investigational drug called PTG-300 for treating chronic anaemia caused by ineffective erythropoiesis in patients who have…
Rare diseases come in many forms, shapes, and sizes - with varying degrees of symptoms and attributes. Here is one that made news on the Internet, for it's peculiar and…
According to a story from HD Buzz, a recent study has conducted an in-depth investigation into juvenile onset Huntington's disease. It is quite unusual for this juvenile onset form to…
According to a story from The Atlantic, the continual development of gene editing technologies like CRISPR have the potential to cure a substantial portion of rare diseases that are linked…
According to a story from Scoop Independent News, speech therapists from the Waikato District in New Zealand have been using telehealth technology to great effect in order to deliver speech…
A study carried out by researchers from the University of North Carolina at Chapel Hill suggests that doctors in the state may not be testing patients for Ehrlichia infection often enough.…
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