According to a story from ANCA Vasculitis News, a recent study from Spain is highlighting the need for an updated classification system for ANCA-associated vasculitis that can predict patient prognosis…
According to a press release from global pharmaceuticals titan GlaxoSmithKline, the US Food and Drug Administration (FDA) recently expanded approval of the Company's eosinophilic asthma treatment Nucala (generic name mepolizumab)…
There are currently 11 treatment options for multiple sclerosis (MS) in the United States. Some of these are symptomatic treatments, and some actually slow progression of the disease. Before 2009…
A recent study, published in Nature, examined whether or not stem cells could be modified to reduce their chance of rejection. Stem cell therapies are utilized in a wide array…
A recent publication from Specialty Pharmacy Times noted that the rapidly-growing number of available human immunoglobulin treatments for primary immunodeficiency disorders could pose challenges for specialty pharmacists when treating patients.…
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Glen Sauber successfully overcame testicular cancer and was symptom-free-- until three years later when he began to experience neurological symptoms. According to a recent article in the San Francisco Chronicle,…
According to a publication from BioSpace, researchers from Michigan's Memorial Healthcare Institute for Neurosciences and Multiple Sclerosis are taking full advantage of recent technological advances in neurofilament light chain testing…
As originally reported in the Washington Post: many parents of children with rare diseases are familiar with the agony of mystery surrounding their children’s medical conditions. The frustration of searching…
According to a recent publication from Express Digest, England's National Health Service (NHS) has reversed its earlier position on a rare disease drug after lengthy public debate, now agreeing to…
Allostasis Allostasis is a concept coined by Joseph Eyer and Peter Sterling, colleagues at the University of Pennsylvania. In 1981 they published a paper which contested previous theories on the…
Some promising news for the congenital adrenal hyperplasia (CAH) community! Spruce Biosciences is one step closer to a treatment for CAH after new phase 2a data showed the drug reduced…
One particular problem for those with rare diseases is that the manifestation of the disease is often particular to the patient, each with their own quirks and tendencies. This makes…
Accio Expecto Patronum! With a wave of a wizard's wand, iconic Harry Potter author J.K. Rowling has done an incredible service to the multiple sclerosis community, by donating over $19…
Happy Thursday everyone! We're seeing more and more leaves falling over here, and the weather is genuinely beinning to cool down. Today, we're lighting a two part patient story covering…
Bob Hussey Bob Hussey is a 62-year-old mechanical engineer who, thanks to his own experience as an ulcerative colitis patient, has created a new invention that could help a wide…
In western culture, many people tend to frame body and mind as two distinct parts of us. There are mental health disorders, then there are physical ailments. To treat disease,…
By: Maria Palombini, IEEE-Standards Association For more than a decade there has been much propaganda on educating and encouraging patients to manage their healthcare. This was a direct shift in response…
ABC's Bachelor franchise isn't exactly known for not dramatizing the medical experience of contestants (if this article were in video format, we'd insert a montage here of all of the times…
Stem cell therapy is one of those new health trends that, in many cases, make doctors and scientists cringe. The lack of evidence and research makes critics call it not…
According to a story from mirror.co.uk, a new invention called OrganOx has the potential to make liver transplants more effective and more widely available in the UK. A liver transplant…
According to a story from Newswise, a recent phase 2 clinical trial testing a combination treatment for the rare cancer rhabdomyosarcoma has displayed encouraging results. The combination consists of the…
According to a story from Science Codex, a study conducted by a team of researchers associated with the Nemours Children's Health System is emphasizing the benefits of genetic analysis for…
Click here for Part 1 of Aunika's Story Despite the success of the transplant, baby Aunika wasn’t out of the woods yet. She continued to have issues with breathing and…
According to a story from sectorpublishingintelligence.co.uk, studies utilizing data gathered in the real-world treatment setting are highlighting the characteristics of two different therapies for multiple sclerosis (MS) developed by the…
According to a story from ir.stockpr.com, the biotechnology company CTD Holdings, Inc., recently announced that the US Food and Drug Administration (FDA) has issued an approval for an individual Investigational…
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