Ankylosing Spondylitis has Taken Her Mobility, and She Fears Her Daughter is Next
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Ankylosing Spondylitis has Taken Her Mobility, and She Fears Her Daughter is Next

For Emma, the worst part of receiving her diagnosis with ankylosing spondylitis wasn't adapting to the constant pain, losing her breath over five minutes of standing, being too exhausted to…

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ICYMI: A New Survey Seeks Answers About How COVID-19 is Impacting Rare Disease Patients in the United States
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ICYMI: A New Survey Seeks Answers About How COVID-19 is Impacting Rare Disease Patients in the United States

By Natalie Homan from In The Cloud Copy In the United States, a disease is considered “rare” if it affects less than 200,000 Americans at any given time. Diseases can…

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Satralizumab May Lower Neuromyelitis Optica Spectrum Disorder Relapse in Patients
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Satralizumab May Lower Neuromyelitis Optica Spectrum Disorder Relapse in Patients

By Danielle Bradshaw from In The Cloud Copy It has been shown in a recently published trial that satralizumab could potentially reduce the risk of neuromyelitis optica spectrum disorder (NMOSD)…

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Patients Living with Inflammatory Bowel Disease get 12 Weeks Free on this Virtual Platform
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Patients Living with Inflammatory Bowel Disease get 12 Weeks Free on this Virtual Platform

As reported in Med Gadget, Medtech company  ’11 Health’  has made virtual healthcare affordable this quarantine season, providing patients with severe chronic digestive disorders 12 weeks of free access on their…

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Vodka as Medicine? Researcher Using Alcohol as Possible Treatment for Laryngeal Dystonia
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Vodka as Medicine? Researcher Using Alcohol as Possible Treatment for Laryngeal Dystonia

By Jodee Redmond from In The Cloud Copy Dr. Kristina Simonyan has been studying patients with laryngeal dystonia. Through the scope of her work, she has heard numerous anecdotal accounts…

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Phase 4 Trial Shows Opsumit Can Improve Ventricle Function for Pulmonary Arterial Hypertension Patients
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Phase 4 Trial Shows Opsumit Can Improve Ventricle Function for Pulmonary Arterial Hypertension Patients

A recent Phase 4 study has shown that Opsumit can improve function of the right heart ventricle for patients with pulmonary arterial hypertension (PAH). The right ventricle pumps blood to…

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How Rare Disease Biotech “Cure Rare Disease” Is Handling COVID-19
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How Rare Disease Biotech “Cure Rare Disease” Is Handling COVID-19

From social distancing and shuttered businesses to personal health concerns, COVID-19 has changed daily life for the foreseeable future. There are nearly 4.75 million diagnoses worldwide, with 1.53 million in…

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Gilead Donates 940,000 Remdesivir Doses
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Gilead Donates 940,000 Remdesivir Doses

Multiple biotechnology and pharmaceutical companies have joined in the fight against COVID-19. But one, Gilead Sciences, has been at the forefront of both progress and controversy. The company developed remdesivir,…

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Doctors Report First Ever Successful Transplant of Reprogrammed Cells into the Brain of a Parkinson’s Patient

A recent article in US News and World Report gives an account of the first patient to have reprogrammed cells successfully implanted in his brain. The patient’s doctors reported that…

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A Negative Side Effect of COVID-19: Reduced Cancer Screenings
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A Negative Side Effect of COVID-19: Reduced Cancer Screenings

In her early 20's, Mackenzie Alleman lost her mother to breast cancer. Then, at 28, she herself underwent a preventative double mastectomy after learning that she carried the mutated BRCA1 gene.…

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Exploring the Similar Pathology “Genetic Doppelgängers” ALS and SCA36
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Exploring the Similar Pathology “Genetic Doppelgängers” ALS and SCA36

Recently, scientists from Emory University set out to discover whether there was any pathological link between spinocerebellar ataxia type 36 (SCA36) and amyotrophic lateral sclerosis and frontotemporal dementia (ALS/FTD). Both…

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Research Links Metabolic Syndrome in Parkinson’s Patients Who Have LRRK2 Mutations
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Research Links Metabolic Syndrome in Parkinson’s Patients Who Have LRRK2 Mutations

  A recent article in Parkinson’s News Today described new findings associated with mutations in the LRRK2 gene, which are associated with Parkinson’s disease (PD). Indications are that patients with…

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Could Biobots be the Key to Understanding ALS and other Neuromuscular Diseases?
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Could Biobots be the Key to Understanding ALS and other Neuromuscular Diseases?

  Biological robots, commonly known as biobots, mimic the actions of other organisms (e.g. jumping or swimming). Biobots are composed of artificial materials and also organic material. As published in…

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Atypical Hemolytic Uremic Syndrome & Pregnancy: Early Diagnosis Means Better Outcomes
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Atypical Hemolytic Uremic Syndrome & Pregnancy: Early Diagnosis Means Better Outcomes

Atypical hemolytic uremic syndrome (aHUS) is a rare condition which can be sparked by pregnancy, although it can also occur without it. Essentially, if you are genetically predisposed to the condition,…

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