X-Linked Retinitis Pigmentosa Investigative Gene Therapy is Looking Promising
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X-Linked Retinitis Pigmentosa Investigative Gene Therapy is Looking Promising

Janssen Pharmaceuticals has an ongoing Phase 1/2 clinical trial for the inherited retinal disease X-linked retinitis pigmentosa (XLRP). They are investigating an adeno-associated gene therapy called RPGR as a therapeutic…

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Scares That Care Virtual Charity Event Supporting Marfan Syndrome Patient to Take Place August 1st
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Scares That Care Virtual Charity Event Supporting Marfan Syndrome Patient to Take Place August 1st

Scares That Care Scares That Care is a 501(c)(3) organization, first established in 2007 by Joe Ripple, dedicated to fighting the "monsters" of childhood illnesses, breast cancer, and burns. They support…

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Data Supports Tesamorelin as Effective for HIV-Associated NASH
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Data Supports Tesamorelin as Effective for HIV-Associated NASH

  Biopharmaceutical company Theratechnologies Inc. recently announced that its therapy candidate tesamorelin is effective in the treatment of HIV-associated nonalcoholic steatohepatitis (NASH). According to new data, published in JCI Insight, tesamorelin…

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Patients with Severe AKI Don’t Benefit from Accelerated Therapy
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Patients with Severe AKI Don’t Benefit from Accelerated Therapy

  There's no misunderstanding this fact: renal-replacement therapy is effective for patients with severe acute kidney injuries (AKI). However, states Kenny Walter in MD Magazine, the efficacy of this treatment can depend…

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Nonprofit Encourages Charcot-Marie-Tooth Disease Patients to Stay Active
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Nonprofit Encourages Charcot-Marie-Tooth Disease Patients to Stay Active

According to a story from Charcot-Marie-Tooth News, a new nonprofit organization called Shark Tooth Cycling has recently begun operations. The mission of the organization is to encourage young people in…

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