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Daily Archives: May 6, 2021

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How Singing Helps This Woman Manage Her Spinal Muscular Atrophy
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How Singing Helps This Woman Manage Her Spinal Muscular Atrophy

  • Post author:Kendall Mason
  • Post published:May 6, 2021
  • Post category:Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is a rare, genetic disorder that impacts the muscles, making them progressively weaker over time. To combat this muscle atrophy, patients must exercise their muscles to…

Continue Reading How Singing Helps This Woman Manage Her Spinal Muscular Atrophy
Multiple Myeloma: Experimental Proteasome Inhibitor Could be Effective Treatment
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Multiple Myeloma: Experimental Proteasome Inhibitor Could be Effective Treatment

  • Post author:James Moore
  • Post published:May 6, 2021
  • Post category:Multiple Myeloma

In a recent study published in the scientific journal Cell Death & Disease, a novel proteasome inhibitor designated D395 was evaluated as a possible treatment for multiple myeloma, a rare form of…

Continue Reading Multiple Myeloma: Experimental Proteasome Inhibitor Could be Effective Treatment
IWMF Webinar Covers WM Peripheral Neuropathy
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IWMF Webinar Covers WM Peripheral Neuropathy

  • Post author:James Moore
  • Post published:May 6, 2021
  • Post category:Waldenstrom Macroglobulinemia

On May 4th The International Waldenstrom's Macroglobulinemia Foundation (IWMF) held another webinar in its 2021 IWMF Global Education series titled Peripheral Neuropathy: No Easy Feat. As the title implies, the…

Continue Reading IWMF Webinar Covers WM Peripheral Neuropathy
Transverse Myelitis Appears in 43 COVID-19 Patients in 21 Countries

Transverse Myelitis Appears in 43 COVID-19 Patients in 21 Countries

  • Post author:Rose Duesterwald
  • Post published:May 6, 2021
  • Post category:COVID-19/Transverse myelitis

According to a recent article in MedicalXpress, researchers at Houston Methodist have reported acute transverse myelitis (ATM) in forty-three COVID-19 patients across twenty-one countries. Spinal cord lesions developed in these…

Continue Reading Transverse Myelitis Appears in 43 COVID-19 Patients in 21 Countries
Working Towards Dracunculiasis Eradication in Ethiopia

Working Towards Dracunculiasis Eradication in Ethiopia

  • Post author:Jessica Lynn
  • Post published:May 6, 2021
  • Post category:Dracunculiasis

Last April, 25-year-old Obang Odol Okello became infected with dracunculiasis, also known as Guinea worm disease. According to Thomson Reuters Foundation News, the father of two, who lives in Ethiopia,…

Continue Reading Working Towards Dracunculiasis Eradication in Ethiopia
This Team Needs Your Help with Mal de Debarquement Syndrome Research!

This Team Needs Your Help with Mal de Debarquement Syndrome Research!

  • Post author:Trudy Horsting
  • Post published:May 6, 2021
  • Post category:Mal de debarquement

A team of great researchers need your help! While the researchers who devised this survey (see below for the link) have had a great response from people with Mal de…

Continue Reading This Team Needs Your Help with Mal de Debarquement Syndrome Research!
A Banker, Zumba Instructor, and Busy Bee, Until She Got ME
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A Banker, Zumba Instructor, and Busy Bee, Until She Got ME

  • Post author:Sunniva Bean
  • Post published:May 6, 2021
  • Post category:Chronic Fatigue Syndrome/Myalgic Encephalomyelitis or Chronic Fatigue Syndrome

As reported in Gloucestershire Live, Chantelle Parry has a few years head-start on an experience people emerging from this pandemic with symptoms of long COVID may be about to go…

Continue Reading A Banker, Zumba Instructor, and Busy Bee, Until She Got ME
Ronnie Wood of the Rolling Stones Faced Small Cell Lung Cancer During COVID
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Ronnie Wood of the Rolling Stones Faced Small Cell Lung Cancer During COVID

  • Post author:James Moore
  • Post published:May 6, 2021
  • Post category:Small cell lung cancer

According to a story from MSN, 73 year old Ronnie Wood of the Rolling Stones recently discussed in an interview his struggle with small cell lung cancer during the COVID-19…

Continue Reading Ronnie Wood of the Rolling Stones Faced Small Cell Lung Cancer During COVID
Author Jason Matthews Passes Away Due To Corticobasal Degeneration
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Author Jason Matthews Passes Away Due To Corticobasal Degeneration

  • Post author:Kendall Mason
  • Post published:May 6, 2021
  • Post category:Corticobasal degeneration

Jason Matthews, the author of the award-winning series Red Sparrow and former CIA officer, passed away on April 28th due to corticobasal degeneration. This rare, neurological condition causes the degeneration and…

Continue Reading Author Jason Matthews Passes Away Due To Corticobasal Degeneration

Featured


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Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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